Hello Erin, My name is Tina, I live in Florida and have been a member of the "club" for almost 7years in March 2011. Four years ago my boyfriend (now husband) and I had an unplanned pregnancy while I was on Gleevec 600mg. My onc isnt conservative but she doesn't have any children and tends to be a little stay to the program type of doctor. We chose to keep the baby as we dont believe in abortion, came off all medications right away. I was not in remission at the time, by the end of my pregnancy my counts were WBC 50,000 RBC 30,000 ish and my platelets were very elevated. On Aug 4th 2006 I gave birth to a healthy 8lb 2 1/2 oz baby boy (exactly 40weeks that day lol). We are making plans to have another baby next year, our son just started pre-school and is very healthy absolutely no abnormalities. I highly suggest you read Erin Zammett From glamor Magizine, she is a few years old then I am about your age and now has 2 children with CML. We also thought about adoption but I know I am more then capable of having my own children and with a lot of prayer we made it happen. Email me anytime if you need any help on this journey as I am now fighting again for baby #2. Follow your heart :)
Tina On Mon, Sep 13, 2010 at 9:49 AM, Richard H <[email protected]>wrote: > Hi Erin. I don't have any real answers. I do have family that works > for Virginia Mason and if you are a member, you could call their > customer service and present you concerns and what other ONCs that are > available to counsult you. If you want to e-mail me personally I > would be happy to give you a specific name to call. He has been there > almost 15 years and truly believes in helping the members. > > Richard H. > > On Sep 12, 12:05 pm, sweetbluemusic2002 <[email protected]> > wrote: > > Hi there, > > I'm usually just a reader, but I'm starting on a new journey and > > need some advice. I'm 33 years old, I was diagnosed with CML a little > > over 3 years ago. 400mg of Gleevec every day since has worked fairly > > well for me. We went to see Dr. Druker in OR to ask his opinion on > > starting a family. He felt my numbers looked good, and that physically > > having a child was an option for me. My local oncologist in Seattle is > > more conservative and would rather we just go through the adoption > > process. We've looked into adoption and gone through some of the > > required classes for adopting through foster care. I'm not opposed to > > adoption. However, the further down the adoption road we're getting > > the more it's bothering me that I haven't fully examined physically > > having a child. I'd like to find a local oncologist that's more > > supportive in Seattle, because if we did go the pregnancy route, > > driving to Portland regularly would get to be a lot. So I guess I have > > two questions. 1) For those of you who have gone off their medication > > to have a child, how did it go short term and long term? 2) Does > > anyone have a Seattle oncologist recommendation who might support this > > decision? > > > > Thanks! > > Erin > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
