Would you please tell me what sunlight soap is. I have terrible muscle cramps each night and nothing seems to work including different muscle relaxants. Thanks, Bev (boopshin)
________________________________ From: "[email protected]" <[email protected]> To: Digest Recipients <[email protected]> Sent: Sat, September 25, 2010 5:47:51 AM Subject: [CMLHope] Digest for [email protected] - 6 Messages in 3 Topics Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics * [Bulk] [CMLHope] mussel cramps comming more frequently (need advice) [4 Updates] * Having trouble with sprycel [1 Update] * Genetics Blood Test Results [1 Update] Topic: [Bulk] [CMLHope] mussel cramps comming more frequently (need advice) [email protected] Sep 24 02:52PM -0400 ^ It doesn't have to be Sunlight soap.....any bar of soap has worked for me each time. Crazy but true!!! Susan Zimmerman -----Original Message----- From: john barrons <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Sep 22, 2010 6:58 am Subject: Re: [Bulk] [CMLHope] mussel cramps comming more frequently (need advice) Hi: I don't know whether this will help, but sure helped me with leg cramps. I was told to put a bar of sunlight soap in my bed and the cramps would go away. They did and also for many other people. Don't ask me why, but it seemed to work. good luck ----- Original Message ----- From: DAWN RODEGHIER To: [email protected] Sent: Wednesday, September 22, 2010 9:47 AM Subject: [Bulk] [CMLHope] mussel cramps comming more frequently (need advice) Hello to all, I've been on Gleevic since it was approved for use in the US in 2001. After about a year I started having cramps in my legs at night. Now I get cramps in other areas also, hands, feet, back. They are coming much closer together and I've been losing a lot of work. Many of you have complained of this problem, has any ones Oncologist tried mussel relaxers and if so did they help on the occasions when the cramps were happening. Any help and or advise is more than welcome! Jim Rodeghier -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope [email protected] Sep 24 04:43PM -0400 ^ Hi to all my CML WARRIORS, Those cramps were terrible on Gleevec. They would wake me up at night and I would have to get up and walk. Try massaging the feet and lower legs right before you go to bed and good luck. I had them in my hands also; had trouble chopping veggies and etc. Blessings, Jeanie<3 In a message dated 9/22/2010 3:18:40 P.M. Pacific Daylight Time, [email protected] writes: Jim, I started Gleevec on Feb 5, 2000 and I have had cramps all this time. They come and go. Some are so bad they will make a grown man cry. BUT, it's better then dead. Sorry, to put it that way. I have a six speed trans in my car and their have been times when I'll get a cramp and can't use the clutch and haft to pull of the road and walk it off. Good luck.. greenie In a message dated 9/22/2010 8:48:06 A.M. Central Daylight Time, [email protected] writes: Hello to all, I've been on Gleevic since it was approved for use in the US in 2001. After about a year I started having cramps in my legs at night. Now I get cramps in other areas also, hands, feet, back. They are coming much closer together and I've been losing a lot of work. Many of you have complained of this problem, has any ones Oncologist tried mussel relaxers and if so did they help on the occasions when the cramps were happening. Any help and or advise is more than welcome! Jim Rodeghier -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) [email protected] Sep 24 04:45PM -0400 ^ Yes Bob that could be the answer. I never did drink much water. Jeanie<3 In a message dated 9/23/2010 6:41:32 A.M. Pacific Daylight Time, [email protected] writes: I, too, have had cramps and in weird ways. The arch of my foot, the middle of my back, my thumb, etc. My primary care doctor immediately said I was dehydrated. Because of the gleevec, the electrolyte imbalance can happen sooner for us than for most people. So, although most folks wouldn't be dehydrated at the same water intake level, we will be. I've started being a lot more diligent in drinking water and the cramps have really eased off. If I have a rough day at work with a lot of meetings and a lot of coffee coupled with not much water; that night I will notice the cramps are worse. I've also noticed that if I do a lot of yard work, for example, and don't drink a good amount before starting, the cramps are much worse. So, it all seems to tie together. I was struck by how quickly and definitively my doctor said dehydration. Like most of these things, everyone responds differently, but that's what I've been doing to combat them. Bob > Hello to all, I've been on Gleevic since it was approved for use in the US in 2001. After about a year I started having cramps in my legs at night. Now I get cramps in other areas also, hands, feet, back. They are coming much closer together and I've been losing a lot of work. Many of you have complained of this problem, has any ones Oncologist tried mussel relaxers and if so did they help on the occasions when the cramps were happening. > Any help and or advise is more than welcome! > Jim Rodeghier -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope "[email protected]" <[email protected]> Sep 24 08:54PM -0700 ^ When I was on Gllevec, I had muscle cramps bad. I couldn't drive, my foot cramped up pressing the gas pedal. they hit me at night, in the calfs of my legs, arch in my feet, hips, even in my side. I took soma muscle relaxers and they took care of most of it. Topic: Having trouble with sprycel "[email protected]" <[email protected]> Sep 24 08:50PM -0700 ^ I've run into some new problems with sprycel so I need some advice. I haven't mentioned it to my doctor yet but the sprycel is making my chest hurt, heart racing out of my chest, go into a panic attack upon getting up each day. I know this is doing it. Last week, when I went to get my sprycel filled, they didn't have any in stock, they ordered it but then my insurance said I needed prior authorization so this took 3 days...anyway, I didn't have any sprycel to take for about 5 days and when I didn't take it, I had none of those symptoms. Has anyone else had this problem? They are still giving me the bad headaches, too. I started seeing a new primary doctor, don't think he is going to please me either, but anyway, since i was so severely depressed, he would not treat me for it and has me seeing a psychiatrist. He started me on cymbalta 30mgs first week, 2nd week 60mgs. They make me so nauseous, also give me a headache. The side effects are horrendous, and some of the side effects are the same as the sprycel. Keep in mind I do have emphysema. I just don't think the sprycel is going to work out for me , nor the cymbalta. I have gerd and the sprycel and cymbalta seem to be keeping it flared up. I am taking both at night, one to avoid the nausea and the other to sleep thru the headache which I still wake up with one.Please share your input with me. I am terrified...if I can't take sprycel, I don't know what i am going to do...the tasgina is definitely not an option. Love,peace, hope n prayers, Pat Topic: Genetics Blood Test Results [email protected] Sep 24 10:55PM -0400 ^ Tom, Don't like the Island Cow...not had good luck there,, Over Easy ..yep..favorites, Captiva..Mucky Duck, The Green Flash....Good jazz music, appetizers and Desert- Ellingtons...The Timbers is usually good at the bar for lunch or for a nicer dinner......,Jacaranda, for fish, The PInk Flamingo for a good sandwich or clam chowder..Matzaluna for good Pasta or PIzza...and..Light House Cafe for Manhole cover pancakes..., PInnochios for Icecream ad Yogurt.......do you think I have been going for a for years??? :') they closed most of my old favorite restaurants.....but new one's opened..just haven't been to them yet... Ding Darling and the Roseate Spoonbills, the White Pelicans and Night Herons is one of my favorite places.....and one secret place that you may or may not know about....Jerry, of Jerry's Grocery store maintains a bird sanctuary in the middle of the Trailer park area right off of Periwinkle..birds, rarer ducks, monkeys etc..from all over the world are there...it' s a delight..complete with a small pond, black swans etc....a gem...park up front in visitor parking or in the shoppng mall adjacent andj ust walk across...then walk on down toards the water.....and the residents are so welcoming!!!!! I hope to get there this winter....G-d willing!!!! Beth -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
