Thank you so much Pat for your email and suggestions. I have changed some of my privacy settings, so we shall see :) Livia
--- On Fri, 3/25/11, Pat Elliot <[email protected]> wrote: From: Pat Elliot <[email protected]> Subject: RE: [CMLHope] no more posts To: [email protected] Date: Friday, March 25, 2011, 11:54 AM Livia – You raise a good point that concerns many people with health conditions, not just those with CML. The ability to obtain employment, to remain employed and various other aspects of life are now determined in part by some companies on the basis of the information they are able to obtain through sophisticated Internet search profiling systems. In order to be active and participate in groups you can use just your first name or develop a personal user name and use a throw away email address (gmail, Hotmail, etc.) that does not directly identify you or tie to your personal home or business information. There are many ways to participate online and remain safe. It’s important to understand that everything you post is online forever and is searchable in some way. You are free to do whatever you think is best for you and your personal circumstances, and it is wise to do so. This is just another aspect of advocating for and protecting one’s health in an Internet world. Thank you for bringing it up. Best regards, Pat From: [email protected] [mailto:[email protected]] On Behalf Of livia klescova Sent: Friday, March 25, 2011 7:22 AM To: [email protected] Subject: Re: [CMLHope] no more posts I LOVE this group, but I am also concerned that our private information we share here is available to the public. You can google your name and first thing that posts is CML. That's why I keep reading posts, but rarely publish anything. Maybe I can change my name from my first name and last name to some "nickname"? Any suggestions? Livia. --- On Wed, 3/23/11, sylwia <[email protected]> wrote: From: sylwia <[email protected]> Subject: Re: [CMLHope] no more posts To: [email protected] Date: Wednesday, March 23, 2011, 2:55 PM Hi,. I tried to stop receiving messages of this group, twice! And "To unsubscribe from this group, send email to [email protected]" - DOESN'T WORK :( I have not been posting in this group in moths, too. Pls, let me know if you'll find the way to stop receiving messages. And thanks for information about public acces to this posting group. Best wishes :) 2011/3/23 cmler <[email protected]> Just wanted to let you all know i have stopped posting in this forum because even though Google tells you this is a private group and only members can read it, other websites that "archive public groups" are archiving our messages and making them available to the public. I've tried to get this fixed, but cannot. Therefore, I have not been posting in this group in months and will not from now on. I just thought the rest of you should know. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
