My CML occurred approximately 6 months after having received total body radiation.
From: "icandoall...@aol.com" <icandoall...@aol.com> To: cmlhope@googlegroups.com Sent: Wednesday, August 31, 2011 5:20 PM Subject: Re: [CMLHope] leukemia & heredity Hi no one in my family ever had a blood disease but who knows? They don't even know what causes it. Good luck, Jeanie<3 In a message dated 8/31/2011 1:34:15 P.M. Pacific Daylight Time, doem...@charter.net writes: Hi Ruth, > >I think there are still a lot of unknowns on whether or not there is some >genetic component to risk for blood cancers. I talked with a researcher a few >years ago that was looking at families with CLL and there is some connection >with that leukemia--CLL itself does have family clusters--but he said he had >not seen an association with CLL and CML in the same family. He also said he >wasn't studying that so it could be possible. My father had CLL as well and >my niece died of ALL. > >I went to an LLS board meeting this week and we had a woman guest who lost all >three of her grown children to AML in a 2 year period. Her children were 36, >32, and 22 and all were diagnosed and died within a 2 year span from 2004 to >2006. It is truly a horrible story. She has not recovered and I wonder if >she ever will. She still appears to be in shock. She said no one has come to >her to ask for a dna sample so they could study this case--and she seemed >angry that no one seemed interested enough in doing this research. I >understood her anger and frustration, but I also know that funding for >research is limited and most researchers are too busy looking for cures and >treatments. There are a limited number of researchers and every topic can't >possibly get studied immediately. I'm sure someone will eventually figure out >whether or not there is some genetic marker that makes families prone to blood >cancers. > >Hope you are doing well! > >Best wishes, >Dorothy > >On Aug 30, 2011, at 11:48 PM, marcon wrote: > >> After I read the replies from Pat Elliott and Suzie Q I >> realized I needed to clarify my reason for going to a >> geneticist. It wasn't because of the family history of >> leukemia, but because of breast cancer history. My sister >> had breast cancer. I had the test for BRCA 1 and BRCA 2 , >> and the result was negative. As I recall, the geneticist >> was interested only in the medical history of my parents and >> siblings. Aunts, uncles, and cousins didn't seem to matter. >> I think I had this test about 3 yrs. ago. (About 4 years ago >> I joined The Sister Study. The study follows the sister of a >> sister who had breast cancer. It's a 10-year study, partly >> government funded. The study is a questionnaire that asks >> for medical history, and health, exercise, and dietary >> habits. The questionnaire is updated periodically.) >> >> Re the interview on Patient Power, I'll be sure to watch it >> myself. And I will pass it along to my brother. When 1st >> diagnosed he said he didn't want to read anything about >> MGUS. Whatever the dr. told him was enough. Now, about 6 >> months after dx, he is receptive to new information about >> MGUS and myeloma. >> >> So thank you, Pat, and thank you, Suzie Q, for your help and >> understanding. My best to you, >> >> Ruth Marcon >> >> -- > >-- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to CMLHope@googlegroups.com >To unsubscribe from this group, send email to >cmlhope-unsubscr...@googlegroups.com >For more options, visit this group at http://groups.google.com/group/CMLHope-- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
