CML is my second cancer. I too want to know all of the risks and potential
side effects, especially as more TKIs, and therefore more choices, become
available. My medical team and I balance multiple considerations, and need
data to do so. We have already had to address the potential risk of
increasing the chance of a recurrence of the first cancer while considering
changing my TKI. This involved two "expert" opinions, one of which was
inaccurate. Fortunately we were able to consult with a third expert, one who
is only focused on CML, and get the data we needed to make the right
choices. Separately, I feel very strongly that patients with any type of
cancer deserve to know the full risks they face from their treatments,
including the risk of developing blood cancers down the road, so they can
make informed choices, be aware of the potential warning signs, and optimize
their chances for recovery. 

Pat Elliott
Phoenix, Arizona


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[CMLHope]
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