Have your derm prescribe "halobetasol propionate ointment" On Sep 30, 2011 4:47 PM, <[email protected]> wrote: > Hope all goes well for you Kelly. I have a question? Last month I stopped > my Gleevec for 7 days, long story. I started up again and within a few > days I devolved a rash (red) on the part that crossed the fence last if you > know what I mean. Went to my local internist here and he gave me a tube of
> Clotrimazile and Betamethasone Dipropionate cream and I've put in on for > two weeks but the rash is still their. I tried some diaper rash ointment > last night but that doesn't seem to work either. Grace purchased some > Oatmeal bath treatment so I'm going to try that tonight. I made and > appointment with a dermatologists for Monday and will see what he comes up with. Has > anyone of you had a problem like this, I hope it's not the Gleevec. This > just started out of the blue. greenie > > > In a message dated 9/30/2011 9:55:02 A.M. Pacific Daylight Time, > [email protected] writes: > > I wish my doc had listened to my complaints. He originally put me on > 140 mg of Sprycel - within a week, I could not catch my breath. I > stopped it on my own - then - my husband was laid off and I took a 8-9 > month "vacation" due to no insurance. My onc then placed me on 100 mg > of Sprycel, which I tolerated better and absolutely MUCH better than > the Gleevec, so I just took the side effects in stride. I WISH he had > lowered my dose when I asked him to.....PAH as a result. Now I don't > trust him anymore because he refused to listen to me in the first > place. BUT, I just got a call from MD Anderson and I have an appt. on > Oct 10. Whoo hoo!!! Dr. Jorge Cortes is one of the leading CML > specialists who identified the correlation between Sprycel and PAH and > he is the doc I am going to see. ROAD TRIP!! My mother, brother and I > are going to rent a van and head for Texas! I am hoping he might be > able to work me into a subcutaneous pump for my Remodulin instead of a > Hickman line pump...but, that's not his specialty...ha ha. Wish me > luck!! > > Kelly > > On Sep 30, 7:45 am, [email protected] wrote: >> I was taken off Gleevec in March due to acute kidney failure. Started >> Sprycel one week later. I am doing much better on Sprycel than Gleevec. > i had >> very serious side effects for 10 years, The cramps are gone, I have > stopped >> throwing up, my hemoglobin has climbed from 9 to 11, my white count is up >> to normal, and my kidneys are slowly recovering. I am on 100mg daily. > The >> only 2 side effects I am having now is bone pain in my legs and a rash. >> Overall, I feel so much better. I am also a Michigan resident. Where do > you >> treat at? I see Dr Shurafa at Great lakes Cancer Management in Grosse > Point. I >> started with him when he was at Henry ford in Detroit. wonderful man. >> Carol kalat >> >> In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time, >> >> [email protected] writes: >> >> Today's Topic Summary >> Group: _http://groups.google.com/group/cmlhope/topics_ >> (http://groups.google.com/group/cmlhope/topics) >> * _Just got the bad news, Gleevec out after 7 years!_ >> (mip://09e06990/default.html#group_thread_0) [1 Update] >> * _Problems with Food and Gleevec_ >> (mip://09e06990/default.html#group_thread_1) [1 Update] >> Topic: _Just got the bad news, Gleevec out after 7 years!_ >> (http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff) >> [email protected] Sep 29 10:18PM -0400 _^_ >> (mip://09e06990/default.html#digest_top) >> >> Could anyone give me info about nose bleeds and Gleevec >> Teepee >> >> In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time, >> >> [email protected] writes: >> >> Thannk you for the information. >> >> On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <[email protected]_ >> >> (mailto:[email protected]) > wrote: >> >> I was diagnosed in 11-05 and started on Gleevec but within 2 months had >> developed liver function failure. Was started on Sprycel 70mg bid and > that >> just about wiped out my platlets. Waited for bone marrow to recover and >> was >> put on only 20 mg bid. I have been on that ever since. My pcr tests >> comes back UNDECTABLE almost every time they do it every three months. >> Once in >> a great while a very smalll amount is detected. Onocologist said that > is >> the name of the game. I do have joint pain and have put on 30 lbs but >> basically that is the only side effect in 4 years. Best of luck to you. >> Carolyn >> >> >> >> ----- Original Message ----- From: "kneesrbad2" <[email protected]_ >> (mailto:[email protected]) > >> To: "CMLHope" <[email protected]_ >> (mailto:[email protected]) >> >> Sent: Tuesday, March 22, 2011 10:59 PM >> >> Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years! >> >> I don't know what went wrong but my abnormal cells increased 3 fold on >> my last BMA. Now going onto Sprycel! I need everyone who is on >> Sprycel to give me your quick stories of what to expect with the new >> round of side affects from Sprycel. On Gleevec, here is MY list of >> side affects, Diarehea, fatique, eye bleeds, water retention, thin >> skin, pale skin (burn easily), cramps, sinus operation, pumpkin face, >> joint pains, insomnia, etc etc etc. >> >> What am I faced with for side affects on Sprycel? Suppose to start >> it next week. >> >> I am a 55 year old, male, Michigan resident, DX'd on my Wedding >> anniversary in 2004, in full blast stage with a spleen they were going >> to take out immediately and when I say immediately, I mean 3:30 am >> with a full siren ambulance to a major hospital but they saved it!! I >> was tested for a full Bone Marrow Transplant with my brothers and I >> have a 100% match from my younger brother if I need it. I just want >> to hear the good, the bad and the ugly from those on Sprycel, >> please. >> >> Also, and almost as important to our CML family for one reason or >> another I have a few extra bottles of Gleevec 400 mg bottles still >> with the seal on it if anyone is interested in talking with me in >> private. I would like to help someone who may have a huge co pay on >> their Gleevec payments. This will be handled away from this site and >> all parties will get to know who the other parties are. I just don't >> want these expensive drugs to go to waste because my body decides, the >> heck with you, drug change. >> >> Please reply and let me know! Thanks >> >> -- >> [CMLHope] >> A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to [email protected]_ >> (mailto:[email protected]) >> To unsubscribe from this group, send email to >> [email protected]_ >> (mailto:[email protected]) >> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> >> -- >> [CMLHope] >> A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to [email protected]_ >> (mailto:[email protected]) >> To unsubscribe from this group, send email to >> [email protected]_ >> (mailto:[email protected]) >> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> >> -- >> [CMLHope] >> A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> >> Topic: _Problems with Food and Gleevec_ >> (http://groups.google.com/group/cmlhope/t/14a9abc196016adc) >> [email protected] Sep 29 10:07PM -0400 _^_ >> (mip://09e06990/default.html#digest_top) >> >> I Was Wondering if there is any connection with nose bleeds to Gleevec. >> could anyone give me some information about this and is serious? >> >> Thanks >> >> Teepee >> >> In a message dated 9/27/2011 1:33:36 P.M. Eastern Daylight Time, >> [email protected] writes: >> >> Dr. Moshe Talpaz U of M 734-647-8901. >> On Sep 27, 2011 11:07 AM, <[email protected]_ (mailto:[email protected]) >> >> wrote: >> > Kelly, I don't know how far away you are from Chicago but you could > try >> > calling Northwestern Medical Faculty Foundation Comprehensive Cancer >> Center >> > Groups >> >> "CMLHope" group. >> >> To post to this group, send email to [email protected]_ >> (mailto:[email protected]) >> >> To unsubscribe from this group, send email to >> >> [email protected]_ >> (mailto:[email protected]) >> >> For more options, visit this group at >> > __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) >> (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> > A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> > ------------------------------------------------- >> >> > You received this message because you are subscribed to the Google >> Groups >> > "CMLHope" group. >> > To post to this group, send email to [email protected]_ >> (mailto:[email protected]) >> > To unsubscribe from this group, send email to >> > [email protected]_ >> (mailto:[email protected]) >> > For more options, visit this group at >> > __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) >> (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> > A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> > ------------------------------------------------- >> >> > You received this message because you are subscribed to the Google >> Groups "CMLHope" group. >> > To post to this group, send email to [email protected]_ >> (mailto:[email protected]) >> > To unsubscribe from this group, send email to >> [email protected]_ >> (mailto:[email protected]) >> > For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> >> -- >> [CMLHope] >> A support group of __http://cmlhope.com__(http://cmlhope.com_/) >> (_http://cmlhope.com/_(http://cmlhope.com/) ) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ >> (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ >> (http://groups.google.com/group/CMLHope) ) >> >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_(http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this >> >> ... >> >> read more ยป > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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