Yes, I had a much worse time when I was on Gleevec with skin irritations. I have a topical cream my onc prescribed and have found a humidifier helps some. I feel I get along much better with the Sprycel but I still have skin irritations and very dry skin.
On Dec 20, 10:34 am, Carol Bennett <[email protected]> wrote: > Has anyone experienced itchy skin while using Sprycel? What did you use that > was effective in treating? Did the itching get better or worse (or stay the > same) over time? Thank you very much for any insights. > > To: [email protected] > From: [email protected] > Subject: [CMLHope] Digest for [email protected] - 8 Messages in 2 > Topics > Date: Sun, 18 Dec 2011 10:13:33 +0000 > > Today's Topic Summary > Group:http://groups.google.com/group/cmlhope/topics > > sprycel dosage and plural effusion [3 Updates] > Recent Doctor's visit [5 Updates] > sprycel dosage and plural effusion > "[email protected]" <[email protected]> Dec 16 02:08PM -0800 > > I have been on only 20mg of sprycel bid for at least 4 years now. I > show a small amount of plural effusion but it doesn't bother me and dr > exrays every 3 months and always there is no change. This is a > miracle drug even at this small dosage the fish test shows cml > undectable almost every time they do it which is every three-four > months. > > [email protected] Dec 17 09:54AM -0500 > > Jkuptz....thanks for the input. I am incouraged that some can do well at > a lower dose. Have you gotten PCR tests done as well? What do they show? > Did you get Pericardial Effusion too? Tom in KY > > In a message dated 12/17/2011 8:10:18 A.M. Eastern Standard Time, > > [email protected] writes: > > I have been on only 20mg of sprycel bid for at least 4 years now. I > show a small amount of plural effusion but it doesn't bother me and dr > exrays every 3 months and always there is no change. This is a > miracle drug even at this small dosage the fish test shows cml > undectable almost every time they do it which is every three-four > months. > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope > > [email protected] Dec 18 01:02AM -0500 > > 20 mgs. BID is twice a day..do you split the dose morning and evening, or > take one dose of 40? Just curious because the half life of sprycel is less > than 5 hours. My PCR was <.0002 and has remained there for the last year with > one blip..so I have decided..I am going to try 40mgs ( instead of 50) and > see if I have less side effects and it holds me with the same PCR..I will do > PCR in a month..as opposed to three months..start out with PCR at closer > intervals until I am sure it's holding me.... > Least dose that works ....keeping my fingers crossed for all of us!!! Beth > > Recent Doctor's visit > [email protected] Dec 17 10:06AM -0500 > > Thx...will do! You have been most helpful..thanks! T > > In a message dated 12/16/2011 11:57:41 P.M. Eastern Standard Time, > > [email protected] writes: > > If you have shortness of breath and a full chest then you may be showing > signs of Pah. Demand an echocardiogram and a chest X-ray immediately.. > On Dec 16, 2011 6:06 PM, <[email protected]_ (mailto:[email protected]) > > wrote: > > Also Tom, 50 mgs a day with a diuretic to keep swelling issues at a > distance if you are prone to the swelling side effects works well for many. I > had shortness of breath and a feeling of fullness in the chest...Before it > became problematic.I went on furosamide..and that reolved the swelling. Good > luck and keep me posted! Beth > -- > [CMLHope] > A support group of _http://cmlhope.com_(http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected]_ > (mailto:[email protected]) > To unsubscribe from this group, send email to > [email protected]_ > (mailto:[email protected]) > For more options, visit this group at > _http://groups.google.com/group/CMLHope_(http://groups.google.com/group/CMLHope) > > -- > [CMLHope] > A support group of _http://cmlhope.com_(http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > _http://groups.google.com/group/CMLHope_(http://groups.google.com/group/CMLHope) > > [email protected] Dec 17 10:17AM -0500 > > Beth..thanks for your helpful information! > > If I remember correctly, you have connections in the Ft Myers/Sanibel > area. Where did you go for cancer treatment, etc. I need to establish an > Oncologist there since I will be in the middle of trying to figure out the > right dose of Sprycel while fighting Pleural Effusion. Do you have a good > clinic/Dr reference? > > We go to Sanibel for ~4 months each winter...can't wait to get in the warm > sunshine. > > Tom in KY > > [email protected] Dec 17 04:39PM -0500 > > Tom, if you come to South Fort Myers area drop me a note. I live less > then 5 min. from Sanibel. Or anyone for that matter. Across from Ruby > Tuesday's. on Summerlin. greenie > > In a message dated 12/17/2011 10:18:06 A.M. Eastern Standard Time, > > [email protected] writes: > > Beth..thanks for your helpful information! > > If I remember correctly, you have connections in the Ft Myers/Sanibel > area. Where did you go for cancer treatment, etc. I need to establish an > Oncologist there since I will be in the middle of trying to figure out the > right dose of Sprycel while fighting Pleural Effusion. Do you have a good > clinic/Dr reference? > > We go to Sanibel for ~4 months each winter...can't wait to get in the warm > sunshine. > > Tom in KY > -- > [CMLHope] > A support group of _http://cmlhope.com_(http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > _http://groups.google.com/group/CMLHope_(http://groups.google.com/group/CMLHope) > > Suzieq <[email protected]> Dec 17 05:12PM -0800 > > Marty: > > Thank you for all your kind words..........& I am very thankful for > each > & every day that I wake up and put my feet on the floor! Yes, there > are > some really awful days, but, they have become a few less as the > years > roll by since being diagnosed. I've learned to "cope" as I am sure > you > have learned to do as well. My goal is to try and be a blessing to > somebody > each day if possible. That's all I ask for........ > > Now you have a blessed day, > Suzieq > > [email protected] Dec 18 12:55AM -0500 > > Thanks for the generous offer to all of us Greenie....Tom, since I haven't > been to Sanibel since being diagnosed..I don't know of specific doctors, > but Health Park is a huge complex that I imagine is a good place to > start...From what people write here, many poeople travel to Moffit to see > oncologists..but a local hospital for XRays, echo cardiogram, EKG's, routine > blood work > etc.. makes sense.....If you have PE, you really do feel it... > > I went to Sanibel for 28 years..once a year in January....I have lost both > my parenst in the last few years, my mom this past /August. after 9 months > on Hospice. Her memorial was full of pictures of the beaches of Sanibel, > shelling, Jerry's bird sanctuary, Ding Darling, CROW, Bailey's track, walking > my > two miles up to the light house watching the sun rise, and two miles back > before breakfast, wathcing the pelican's dive, and the dolphin feed along the > shore......Sitting outside the Mucky Duck, New Years at many different > places, alligators sunning on the golf course, ...the Timbers shrimp, > Ellington's piano man, The Green Flash, and a thousand other memories...I > hope to get > back to my home away from home soon..and when I do..I hope to meet up with > you, and Greenie..and meet other's who walk the same path as I. I may try to > get down towards the end of January...or February... > > until then..be well..and I will think of you guys fondly...say hello to the > beach for me.. > > You received this message because you are subscribed to the Google Group > cmlhope. > You can post via email. > To unsubscribe from this group, send an empty message. > For more options, visit this group. > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
