I'm a CML patient and healthcare journalist, and wanted to make you aware of the following resources I work with to bring news to the CML community.
Facebook page - CML World - covers global news and events in the CML community. http://www.facebook.com/CMLWorld Facebook page - The National CML Society - Nonprofit organization for US patients, page covers NCMLS services and activities, including meetings of local community support groups (CML Connection) plus news/ information about the CML community including clinical developments, patient stories, legislative updates, clinical trials updates. http://www.facebook.com/thenationalcmlsociety Facebook page - CML Advocates Network - Open to all, news from and about the work of the international CML Advocates Network which represents patient groups from 51 countries and every continent. I represent the US to this group. http://www.facebook.com/pages/CML-Advocates-Network/ Patient Power CML Health Education Center - Health website founded by leukemia (CLL) survivor and medical journalist Andrew Schorr, a friend for 25+ years Video interviews with leading CML experts from major medical centers such as MD Anderson, OHSU and key clinical conferences such as ASH, ASCO as well as multiple video programs with CML patients and caregivers. http://www.patientpower.info/health-topic/chronic-myelogenous-leukemia Rob - I would be happy to contribute to the CML Hope Facebook page as well. I also welcome input and topic suggestions from members of this group. Our community is growing larger and larger every year, as is the need for information. There are multiple groups on Facebook now (Use the search box to find them). I'm sure the newly diagnosed would greatly benefit from the experience and support that others could provide as they seek answers to many, many questions. Warm regards to all, Pat Elliott Phoenix, Arizona CML patient and e-patient advocate On Feb 23, 8:25 am, Robert W Neill Jr <[email protected]> wrote: > I wanted to mention that we have a Facebook group now for CMLHope.Com > Not as many people seem to use email groups as they did in the past. It > would > be good to get more activity in the Facebook group. > > http://www.facebook.com/pages/CMLHopeCom/294037421385 > > Rob -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
