Pat, thank you for this information, it's going to be very helpful. A good friend of mine lives in Cave Creek, AZ. Greenie Ft. Myers, FL. In a message dated 3/12/2012 2:08:23 P.M. Eastern Daylight Time, [email protected] writes:
There are several reasons for a loss of response, your physician will need to order testing to determine if there is a gene mutation. In the meantime, education on current CML options can help ease your mind. This is also a topic we all need to think about and a key reason why the National CML Society and Patient Power have teamed up to bring current clinical information from the country's top experts directly to patients through video interviews. Please see what Dr. Michael Mauro from OHSU has to say, from ASH 2011, in this interview: Considering Your Treatment Options to Better Manage CML http://www.patientpower.info/video/considering-your-treatment-options-to-bet ter-manage-cml There are additional interviews on Patient Power from ASH on the three FDA approved drugs and the two additonal drugs now in clinical trials and showing very positive results for those dealing with loss of response. In short, there are more options than ever before for us and many reasons to be optimistic! Hope this is helpful! Pat Elliott Phoenix, Arizona On Mar 12, 10:54 am, skink1100 <[email protected]> wrote: > I have had cml for nearly 10 years. For several years I was at the > not detectable level in my pcr tests. Last year the gleevec seemed to > no longer be as effective...and my doctor switched me to > sprycel...about 4 months ago...my results continue to decline, > although my blood looks ok. Has anyone had a similar > experience...could it be a new mutation? Where does on go from > here...getting worried. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
