Thanks all. It's my background - including many years in technology. Everything said online in a group can become public and there are more and more ways that every comment made online is being stored and made available to law enforcement, the IRS, employers, prospective employers and, of course, advertisers. We mainly hear about the advertising end but it's much deeper. As long as health insurance in the US is tied to employment for people under the age of 65 there are many reasons to be cautious while online. Many of my younger CML friends have to remain hidden with their illness out of fear of losing their employment or being able to get another job if they lose their employment. Someday I hope to be able to provide a guidebook for patients about all of this and, hopefully, also be able to provide some safer avenues for discussions.
From: [email protected] [mailto:[email protected]] On Behalf Of [email protected] Sent: Saturday, March 17, 2012 11:11 AM To: [email protected] Subject: Re: [CMLHope] Re: need Cleevec for my son Me Three. greenie In a message dated 3/17/2012 1:07:14 P.M. Eastern Daylight Time, [email protected] writes: Yes good response Pat! Someday I may learn to be more diplomatic and PC...lol! On Sat, Mar 17, 2012 at 7:52 AM, Suzieq <[email protected]> wrote: Michelle: I'm with you on this......it was the first thing I thought of when I saw the post. 2nd, was the "dermatofibrosarcoma" ?? My antenna's came up, sorry. And, as you pointed out, the spelling or poor grammar. I liked Pat's response. Suzieq -- [CMLHope] A support group of http://cmlhope.com <http://cmlhope.com/> ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [email protected] www.LearntoBallroomDanceOnline.com <http://www.learntoballroomdanceonline.com/> -- [CMLHope] A support group of http://cmlhope.com <http://cmlhope.com/> ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
