Kelly - Have you ever looked into NeedyMeds.com? http://www.needymeds.org/ It's a nonprofit started by a doctor and they have aggregated information on patient assistance programs that help with drug costs. Might be able to help you with some of your costs related to the PAH. You could also contact the Patient Advocate Foundation http://www.patientadvocate.org/ and The National CML Society also assists CML patients with medical cost issues http://www.nationalcmlsociety.org/contact-us Sorry you are dealing with all this, hope you find some solutions, and soon! Pat
-----Original Message----- From: [email protected] [mailto:[email protected]] On Behalf Of kellyelise Sent: Tuesday, April 10, 2012 10:05 AM To: CMLHope Subject: [CMLHope] Re: Tasigna Users Thank you for your response, Susan. Quite frankly, it feels as though these drugs are sucking the life right out of me. I hate them with a passion. Good for you for managing so long without them. I am sorry you suffered such awful side effects to the Gleevec. The insurance issue is a huge problem for me, too. My PAH supplies are well over $7,000 per month. My co-pay is $1,500 per month - which I don't have. I suspect it will only be a matter of time before they cut me off. My co-pay for the Tasigna is $3.30 per month - go figure. I have odd dreams where I go off and live somewhere else with my closest friends and children....paradise? lol Marty - you are so funny! Sometimes I think stepping in front of a speeding bus would be a viable option...and then reality sets in and I know it is not. Thanks for making me laugh! 18s, Kelly > To post to this group, send email to [email protected] To > unsubscribe from this group, send email to > [email protected] > For more options, visit this group > athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
