Hello Jody: Sorry about your son having CML, I have been around a long time with it. I never had been lucky enough to get into remission, about twice a year for 35 years I have taken drugs to get WBC under control. My doc would allow my WBC to run up to 100,000 before he started Myleran, I would take it until my counts went down to around 20,000 the residual effect would then come into play. I would then go about my life until I reached 100,000 or there about again. Then we would start all over, all along I felt good never a sick.The reason for the drug Myleran, was that there was no other drug available, mind you this was a long time ago and CML was not around as much. So no one had the experience they have the last 15 or 20 years. About 5 years ago I started in the Nibs (imatnib, dasatinib, nilotinib) one after the other failed. I feel great tho so I would do not worry , there are so many drugs coming down the pike for CML maybe even a cure.Here is an article from the QE2 foundation raising funds maybe it will help to ease your fears. I hope it does? http://www.qe2foundation.com/en/home/stories/patientsuccess/stewartduffie.aspx
________________________________ From: Jody <[email protected]> To: [email protected] Sent:Saturday, June 16, 2012 8:07:28 AM Subject:[CMLHope] For Kelly Hi Kelly My son was diagnosed with CML 3 years ago He goes to Dana Farber in Boston and still is not in remission. He is on Sprycel. I am wondering how long was it before you went into remission? I am concerned that after 3 years he should be! Does anyone out there go to Dana Farber?? Thanks Jody -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
