Thanks Marcie, Yes they told my sister the surgery was the only thing they could do for her now. She opted for pain meds but she is 81 this year. Good Luck, Jeanie<3 In a message dated 11/4/2012 8:01:29 P.M. Eastern Standard Time, [email protected] writes:
Hi Jeanie: I don't think I had a pet scan. That is different than a nuclear stress test, isn't it? If so, no, they did not perform one. I'm so sorry you still have the pain, as I well know how debilitating and scary it is. My rib cage and chest is better over the course of the last week but bone pain elsewhere is off the charts. My husband keeps telling me "getting old is not for sissies" and while that is true, I just turned 60, hardly ancient! My internist wants me to see a cervical spine ortho specialist but I feel like that is opening the door to someone telling me I need surgery. So I'm taking pain meds as infrequently as possible and trying to go about life just being grateful that it is not worse. Please let me know how you do and if you find any answers. I'll keep you in my prayers. MARCIE Sent from my iPad On Nov 4, 2012, at 4:35 PM, [email protected]_ (mailto:[email protected]) wrote: Hi Marcie and thanks so much for getting back to me. No it hasn't gone away. It has been giving me pain everyday. I think it is the rib cage as I have had heart test, lung test and all just like you. Treating my pain with Tramadol and ice. Did you have a pet scan? I had an MRI and it showed nothing. I think it is inflamed rib cage and it's bad to know there is no cure just as our CML. It got really bad on Tasigna. That was when I had the MRI. Let me know if you find out anything else. Thanks, Jeanie<3 In a message dated 11/1/2012 10:59:55 A.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Hi Jeanie: I had terrible pain below my breastbone, seemed like the left side and possibly the heart except that I had no heart attack symptoms (I googled women's heart attack symptoms). The pain was constant and when it reached a 9 out of 10, I called my doctor and went to the ER. They knew immediately it was not a heart attack from the EKG but admitted me, in large part I think, because I am a CML patient. I had an EEG, echocardiogram, MRI, chest x-ray, the works. I learned that my heart is in excellent condition! As they ruled out anything heart related, and my lungs were clear, and they found nothing to justify the intense pain, the doctors came up with costochondritis. If you google it, you find that it is inflammation of the rib cage along the chest wall, no particular cause and no cure other than ibuprofen or acetaminophen or an opiate/narcotic painkiller. It has been nearly 4 weeks since I was hospitalized and I still have occasional pain, some that I can ignore and some that I need that narcotic relief to get by. Also, my blood work was fine so this is not an issue where I could blame it on an infection in the chest. I have so much bone and muscle pain that I just assume it is from 3 1/2 years on Gleevec. Maybe it is not, I do have lots of arthritis, but I never experienced bone pain like I have until I went on Gleevec. Costochondritis doesn't show up on any tests so perhaps this is what you had. I hope that it has gone away for you and never returns. Best wishes to you and keep me updated. Marcie -----Original Message----- From: ICANDOALLTTC <[email protected]_ (mailto:[email protected]) > To: cmlhope <[email protected]_ (mailto:[email protected]) > Sent: Thu, Nov 1, 2012 9:24 am Subject: Re: [CMLHope] Why are my posts not coming through? bone pain marcie Hi, I have side pain that seems to be in my ribs. I wonder if this is what I have. It hurt me so bad when I was put on Tasigna that I had to have a pain killer. They put me on Tamadol. I had an MRI and nothing showed up but that didn't mean it wasn't there. How did you side get? Jeanie,3 In a message dated 10/28/2012 11:13:18 A.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: costochondritis -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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