Yahooooooooooo for all the CML Warriors. Thanks to everyone for sharing their stories with us. Great blessing to all I am sure. Jeanie<3 In a message dated 11/4/2012 9:34:07 P.M. Eastern Standard Time, [email protected] writes:
I too am a patient at siteman with both dr. Khoury and Cashen. I was diagnosed in the emergency room with a 390,000 WBC. Wonderful dr. Khoury gave me a chance 2 b in the first gleevec study bcaus of my er stats that he looked at 9 months later. Thank God for the last 11 years at Siteman. Sent from my iPhone On Nov 4, 2012, at 8:06 PM, Suzieq <[email protected]_ (mailto:[email protected]) > wrote: I will be the same as you, Ms. Jeanie! My Mom always reminds me I called her on her birthday, Feb. 6th, 2004 and told her about the dx'es. I don't remember the exact date, but that's probably right. I started going to the doctor for the pain in my side about the 2nd week of January. Was treated for what the Doctor thought was a severe case of Diverticulitis because I went for the awful pain in the left quadrant side under breast which was the Spleen being tripled in size, but did not find that out till he sent me for a 2nd opinion after the 2 weeks of antibiotics that didn't help and he could still feel a hard mass where he pressed. The new doc sent me downstairs for a CBC and set me up for a CAT scan. Honey, he called me that night around 7:00 freaking out cause my White Blood Cells were off the page and he was going to send them to another Lab to be counted and told me I had something really, really bad wrong with me. My husband wasn't home and I broke down. What doctor in his right mind would call a patient up at home in the evening and tell them this kind of news over the phone. I went in the next day for the CAT scan, of course it showed the Spleen, but the next after noon, my doctor calls me back to tell me what the dx'es was as he had gotten the results from the WBC count and it was almost 300,000. He sent me to an Hem./Onc. and took another three weeks and a very horrific BMB in his office without anything but 2 Lorazopam and 2 Percocets.....I felt every bit of what he did. The BCR-ABL came back positive, so was put on Gleevec (400mgs.) and have been on that till up to the first of this year, was cut down to 200. I have been "none detected" for past two and half years, am hoping to stay that way! My husband was able to pull strings and get me into Sitemen Cancer Center in St. Louis at Barnes Jewish Hospital not long after being put on the Gleevec. I had a wonderful doctor in Hannah Khorey who left after my sixth month there to go to Emory University Hospital in Atlanta. Since then, I had three different doctors, but have been with Dr. Amanda Cashen since June or July of 2005 and have loved her very much. I love the Center there. The most compassionate & professional people I've ever been around. Thanks Jeanie, for taking me back down memory lane. God is good, that's for sure. Love to all and please, Keep Looking Up, Suzieq -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/ CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
