Congratulations to Suzy Q. Hope the None Detectable continues for you. Larry, you & my husband, Nick, have been on Gleevec for 9 years. Nick has been on 400 for quite a while. His Oncologist doesn't want to change his dosage or change to another type of drug option. Neither does Nick. He wants to keep his "non dectable" and not "rock the boat" . He doesn't want any chance the CML would come roaring back! Larry, you are the age of our sons and so you do have a good long life ahead. What might come down the pike as a good alternative to Gleevec will probably be in your future, but not Nick's. And that's O.K. for us. We wish all of you in our CML family a blessed season and a Merry Christmas. Elizabeth W.
________________________________ From: "[email protected]" <[email protected]> To: Digest Recipients <[email protected]> Sent: Thursday, December 13, 2012 5:45 AM Subject: [CMLHope] Digest for [email protected] - 5 Messages in 1 Topic Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics * BCR-ABL Results [5 Updates] BCR-ABL Results Suzieq <[email protected]> Dec 12 10:21AM -0800 Good Day to all my fellow CML Survivors: I finally received my test results from my last visit (November 21st) with my Onc./Hem. in St. Louis. I guess because of the holidays, it took a while getting to me. (smile) I am still "None Detected" all across the board! HALLELUJAH!!!! I have tested this now each time since July 12, 2010. And, this time I thought it would be most important since it was 1 year since cutting my Gleevec from the 400mgs I had been taking since day one (Feb. '04) in half to 200mgs. So, it is working just fine! My body seems to have adjusted to the 200mgs. and I don't have any problems with taking it as I did with the 400. I am still having a lot of joint pain, but not a whole lot I can do about it. I did talk with her about how I think we are going to have to address this within the next year. I told her that maybe they could send me to some doctor that specializes in Arthritis. Well, just wanted to share this. I want to also wish every one a very Merry Christmas & Happy Holidays. God bless you one and all throughout the New Year, too! Love & Keep Looking Up, Suzieq "larry" <[email protected]> Dec 12 01:37PM -0500 I have been on 400 of gleevec sence april 2003 and have thought about going to 200 . been bcr neg since nov 2003 . don't seem to have lots of issues with 400mg just wondering how your feeling on the 200 now . just worried with 200 it might come back , don't want to loose ground after 9 yrs . I am 46 and still have a lot of life I want to enjoy . Larry Lexington , ky . From: [email protected] [mailto:[email protected]] On Behalf Of Suzieq Sent: Wednesday, December 12, 2012 1:22 PM To: [email protected] Subject: [CMLHope] BCR-ABL Results Good Day to all my fellow CML Survivors: I finally received my test results from my last visit (November 21st) with my Onc./Hem. in St. Louis. I guess because of the holidays, it took a while getting to me. (smile) I am still "None Detected" all across the board! HALLELUJAH!!!! I have tested this now each time since July 12, 2010. And, this time I thought it would be most important since it was 1 year since cutting my Gleevec from the 400mgs I had been taking since day one (Feb. '04) in half to 200mgs. So, it is working just fine! My body seems to have adjusted to the 200mgs. and I don't have any problems with taking it as I did with the 400. I am still having a lot of joint pain, but not a whole lot I can do about it. I did talk with her about how I think we are going to have to address this within the next year. I told her that maybe they could send me to some doctor that specializes in Arthritis. Well, just wanted to share this. I want to also wish every one a very Merry Christmas & Happy Holidays. God bless you one and all throughout the New Year, too! Love & Keep Looking Up, Suzieq -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope Marwan Abdeh <[email protected]> Dec 12 11:59PM +0200 I f you have any Gleevec left you will save my son. Pleae advice .I will pay the transportation fee by DHL. pl help Marty Gartenberg <[email protected]> Dec 12 08:16PM -0500 Hi Suzieq, I would also like to wish you a very healthy and happy holiday season. It looks like your doing real well and it should continue. Maybe in the near future if your doctor thinks you could get off of it compleatly or just drop the dose to 100. I would suggest that you run this by a CML speciaist like Dr. Brian Druker. He always returnes emails. So, it gives me great pleasure to say that GOD has, and still continues to bless you. As always, 18's Marty Marcie Goodman <[email protected]> Dec 12 08:53PM -0500 What wonderful news, Suzieq! May the holiday season and New Year bring blessings for you and your family. Marcie Sent from my iPad You received this message because you are subscribed to the Google Group cmlhope. You can post via email. To unsubscribe from this group, send an empty message. For more options, visit this group. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
