Hi Mylissa, Warm regards.
This group has people across the globe. :) Like Mini Europe in Belgium, this group is mini world. :) The initial days look tougher. It will be one year for me by end of March after CML diagnosis. It was a long journey to this situation. Confidence and passion towards life helps a lot. I am a believer. That is also helping me. The muscle pain and cramps were there till few months back. Once I started back my worklife, I dont have many of the discomforts. Hope you will also be fine in all the aspects. :) Wish you all the happiness. regards, Ragavan On Mon, Mar 11, 2013 at 6:12 AM, <[email protected]> wrote: > Hi there, > > I want to thank everyone for all the kind responses and helpful > suggestions. I can't tell you how much it means to hear that there is a > light at the end of the tunnel, I just need to be patient to get there. I > will absolutely try the dial soap trick and the tonic water to help with > the cramps. For cramps through the day, would it work to carry it in my > pocket? > > Marty, my name is Mylissa...didn't mean to be a mystery person - lol. I > live in Markham, Ontario, Canada. I am so glad I found this group...I > don't know anyone else with CML and my onc is not open to a lot of > questions and has told me not to research CML on the internet. Think he's > trying to keep me from getting scared. So it means a lot to hear from all > of you. It's reassuring to know that what I am going through is part of > the experience and not some new added problem. > > Have to say, this has been a frightening experience but things are > beginning to look up, with white cells normal now. I just had cytogenetic > testing done last Tuesday and should have the results back from that by the > end of March. In the meantime, in speaking to the onc about the bone pain, > he thought I should try one week at 200mg, and then try 300mg to see if I > tolerate that better. I sure hope so - one of the reasons I wouldn't want > to change from Gleevec is that the patent expires in April 2013 in > Canada.....which will hopefully make it more affordable. This is a big > issue for me, as I was recently terminated at work, while I've been off on > sick leave - so no more benefits once the notice period is over. I'm sure > that I will be denied benefits at any new job I get as this will then be a > "pre-existing" condition. So affordable meds would definitely be good! I > never knew medication could be so expensive! I keep telling myself I am > not allowed to throw up, because it would be like throwing up $130...lol. > > Thanks again to all who replied. Pat and Michele - I will have a read > through the links you sent me tonight; thanks for the info. > > 18's back to you Marty. > > Mylissa > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
