Hi Greenie: Good to hear from you. How are things in Florida? We are hoping that spring warm weather is on its way to Baltimore. Can't live without that Dial soap. I travel with a bar of it!
Stay well. Marcie Sent from my iPad On Mar 10, 2013, at 5:27 PM, [email protected] wrote: > Hi Marcie, it's greenie. The bar of soap does work, one thing I might add is > to each time the soap you take a bath or shower starts to get to small to use > exchange the one between the sheets with a new one and you the old one that > you were using for the cramps. > > In a message dated 3/10/2013 3:30:00 P.M. Eastern Daylight Time, > [email protected] writes: > I was diagnosed March '09 and put on 400 mg. One year later, it was bumped > to 600 which is where I still stand. Regretfully, the bone pain and charlie > horses are part of the package. My doctor said it was OK for me to try > salonpas, pain patches, and they have been helpful for my back, hip and > knees. You can find them in Walgreens and most stores. The ones I'm > referring to are the small patches that come in a 40 count box. > > As to the charlie horses, I sleep with a bar of Dial soap between my bottom > and top sheets. I thought it was an old wives' tale when someone suggested > it but for 4 years, I have yet to wake up with those awful cramps. I still > get them other times and they are painful. You will find on this site really > positive, warm and caring people, many who have been living with CML far > longer than I. A positive attitude is so key to good results. We have an > illness that now has numerous drug therapies and many, many people have > outlived their original diagnosis by a very long time. > > As a new member of a group none of us would have wished to join, I welcome > you and please feel free to post any time you have a question. Some of the > best advice you will get is here and without question, the friendship, > support and love the fellow CML warriors give is priceless. > > Best wishes to you as you continue on the journey. > > Marcie > Baltimore > -----Original Message----- > From: mylissal <[email protected]> > To: cmlhope <[email protected]> > Sent: Sun, Mar 10, 2013 10:37 am > Subject: [CMLHope] Newly diagnosed with CML > > I was diagnosed with CML in Oct 2012. It was funny, I thought what I was > feeling was stress related due to my job and/or perhaps early onset of the > change of life. Symptoms were extreme fatigue, waking up tired after a full > nights sleep, night sweats and fever, weight loss and discomfort when > sitting. Finally went to a doctor and asked them to check my hormone levels > and do a complete physical. Dr sent me for an ultra sound too because of a > hard lump in my side. Turns out my spleen was twice the size it should have > been and my blood test came back with really high white cells, low red cells > and high platelets. Dr referred me to an Oncologist who has put me on > Gleevec. Today, my white cells are within normal, my red cells are still a > little low and my platelets remain higher than they should be. Had to go on > a disability leave from work due to the pain from trying to sit - from the > enlarged spleen and joint pain. Have been off work since late Nov 2012. I > currently have been experiencing pain in my hip and knee joints, as well as > excruciating pain in my shin bones. Is this normal? Is it the Gleevec > causing it, or the leukemia? > > Also having really weird muscle cramps - charlie horses in my legs that hurt > bad enough to make me cry and cramping in my fingers and toes. Feels like my > hands and feet will never be warm again....am really looking forward to > summer. Anyone else experiencing this? > > The Oncologist says I might have to try a different drug which is scaring me, > as Gleevec has brought down my white counts...what if nothing else works? > Has anyone found anything that relieves the pain? I've tried A535 and hot > baths, heating pads etc Have been told I can't take aspirin, tylenol or > advil as they interact with Gleevec. GP recommended trying massage therapy, > but when certain spots on my knees and legs are touched I can't bear it. > Would be really interested to hear if anyone else has found something that > helps.... > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
