Yes I was on Allopurinal as well for a while. I just remembered that when you posted. Finally taken off both when I went on Gleevec. In a message dated 3/10/2013 4:56:58 P.M. Eastern Daylight Time, [email protected] writes:
And hi right back at you. You didn't leave your actual name so I don't know who to address this to. All of what your now going through is what initially happens when your first diagnosed with CML and then put onto a TKI which Gleevec is one of. Some of the symptoms that you are experiencing may get much better as your body acclimates to the Gleevec, and some may just linger but in time you will adjust to most of these side effects. Don't be afraid if your doctor decides to switch you to another TKI because some are actually better then some others depending on your body. I'm just wondering why your doctor only put you on hydroxyurea initially and not Allopurinal as well. This drug helps get rid of any access uric acid thus avoiding any symptoms of the gout. Now just to let you know I had CML almost 23 years ago and have never been on any of these TKI's because none were around at the time. I had to get a bone marrow transplant. If any of these drugs would have been around then I would have probably opted for them rather then the transplant. Just because you have CML it shouldn't stop you from living your life. When you get used to having all of these side effects, and I will tell you that they will get better because of all that I have heard from people that are on them. Some have actually gone into PCRU and are not taking them anymore. PCRU is when they can not detect any more CML cells in your body. This may happen to some people on these TKI's So, mystery person, you just keep going on with your life because CML will probably not kill you. However I do suggest that you stay clear of speeding buses, they just may. Whenever I write something I always end it with two numbers... 18 which is a symbol for life. 18's to you "mystery person" Marty On Sat, Mar 9, 2013 at 4:17 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi there, I was just diagnosed with CML in Oct 2012. Was put on hydroxyurea initially, but am now on Gleevec. My white counts are now at the low end of normal (4.8), but my platelets remain high. Anyone else experience this? Is this normal with CML? Also have been experiencing excruciating pain in my shin bones....have tried hot baths, A535, heating pad etc but nothing seems to relieve it. Anybody found anything that helps with the pain? I've been told not to take tylenol, aspirin or advil as they interact with the Gleevec..... -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit _https://groups.google.com/groups/opt_out_ (https://groups.google.com/groups/opt_out) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit _https://groups.google.com/groups/opt_out_ (https://groups.google.com/groups/opt_out) . -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
