Hi Millie, I have been on vacation, a cruise and staying with my baby daughter. We had fun. I too am having problems with my stomach hurting and bloated and bad pain in right side under the ribs. I knew you aren't suppose to take those proton pump meds as they interfere with the digestion of the CML drugs. They tried to give that to me in the hospital and I told them it said right on the Sprycel package not to take them. You can take tums or other types of antiacids 2 hours before or 2 hours after the meds but no proton pump like Proselac, Zantac and others. My doctor has ordered the test where they put the tube down you throat. Pleas let me know how the test was done and how it was tolerated. I need to find a good GI doctor. I take Ambian for sleep; it's the only one that works for me; have you tried it. I can't sleep without it even though I've tried many times. Good to hear from you and Beth. Blessings to both, Jeanie<3 CML Warrior for almost 10 years. Gleeved 4-5 years Quit working Tasigna 8 months Quit working Sprycel 4 years In remission after 3 months on Sprycel. Taking 50 mgs daily In a message dated 4/24/2013 11:38:12 P.M. Eastern Daylight Time, [email protected] writes:
Hi Beth, I am so glad we've connected once again. I do think of you often and wonder how you are doing. I went to a GI doctor today and they are doing a scope (down the throat) on Tues. Meanwhile, I have to get a CAT Scan and blood work done, etc. etc. This is a new doctor, but he seems nice. I was seeing another one for Colonoscopies in Allentown, which is about 50 miles from here, and since we are getting older, it's not a good thing to travel this far. I could drive down, but my Husband is in his 80's and gets confused so only drives locally now. I didn't want to change doctors, but decided that having one 20 minutes away would work better for me. I'm having such a problem with nausea, blotting, pain after eating, etc. etc. so must do something to find the problem. Wish me luck. It gets hard to deal with all of my problems at times, but I just take them one at a time and try to get past it. You will always be on my mind, and in my prayers. Feel free to write anytime. If you want to get in touch via my e-mail address. It is [email protected]_ (mailto:[email protected]) . You can always talk to me about anything. It does help. I also admire Judi. She has a lot of issues, but keeps on going. Many hugs, Millie ----- Original Message ----- From: [email protected]_ (mailto:[email protected]) To: [email protected]_ (mailto:[email protected]) Sent: Tuesday, April 23, 2013 7:47 PM Subject: Re: [CMLHope] Skip Duffie Thank you so much for your post Millie. I am sorry that you are up at 4 a.m......and as usual, am so inspired by your attitude. but also your resiliency. Judy walking the grand canyon still inspires me, and her continued capacity to walk like that for this years fundraiser. Everyone's experience with CML is different, but finding words, or experiences that mirror your own..I find it comforting. spring will come...!!! Write soon. take care, Beth -----Original Message----- From: C.M. Houtz <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Apr 20, 2013 3:05 am Subject: Re: [CMLHope] Skip Duffie Hi Beth, I know you struggle with your meds and that you have had so many side effects. I'm so sorry that this new drug has caused you such problems. I am not sleeping well tonight, so decided to get up and do some things on here that I've been meaning to do. I wanted to print out some patterns to hand stitch. I haven't been feeling well, and am seeing an Gastrointerologist (spelling is wrong), but at 4:00 A.M., what do you expect :>). When I came off of two months of Home Care....due to a hip problem, I thought I'd be feeling better, but started with nausea. It's not every day, but enough that I am having trouble dealing with it. I also was in severe pain due to my polymyalgia. After years on Tasigna and dealing with constipation, I'm dealing with the opposite most days. I had a sinus infection and my doctor put me on an antibiotic and that got rid of it, but the stomach problems have stayed with me. I also was taking meds for acid reflux and now, after a year on the stuff, Express Script has told me that it can interfere with the Tasigna, so had to stop that. My pain and whatever has made me so weak that it's almost impossible for me to get up from a chair without help. I'm not sure if the Arthritis has caused this, or if it's a medication problem, but I can understand where you are coming from. I'm anxious to see my Oncologist next month and, hopefully, I'll still be in remission. We all have issues, but must stay strong and fight it as hard as we can. I know that it sounds easy, and know that it isn't, but just remember that we're all here to help one another, and you all have helped me so much. People look at you and think...you look well, and don't realize how difficult this CML is to fight. I look in the mirror and wonder who this old lady is as my hair if all but gone and I no longer have eye lashes, but I try to laugh and just put my wig on and go out whenever I can do it. Lately, that hasn't been to often. The weather is getting better so one of these days, I'm going to go out with my jazzy chair and enjoy the warmer days. I fill in the rest of my time with needle work. I'm doing a lot of embroidery right now, and quilting. I have two quilt tops to finish up and then will have someone get them ready for me to quilt. I try to fill my head with things that I love to do, and that seems to help. I wish there was more that I could say and do to help you. I will keep you in my thoughts and prayers and hope that you will be in remission soon. Take care.......Hugs, Millie -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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