Hi Wes: Welcome to our group. This is an incredible gathering of loving, supportive and knowledgeable people.
I've been on Gleevec since March 2009, started at 400 mg, bumped up in April 2010 to 600 mg, where I remain. If my next BCR-ABL and FISH, which are being done on Friday, come back with good response, my onc is willing to try me back at 400 mg. I am in complete hematologic and cytogenetic remissions but still detectable on the molecular side, although my last number was the same as yours. Fatigue is an ongoing issue and I recently changed some things in my diet which have been helpful. I'm eating almonds and cherries regularly, drinking eight 8 oz glasses of water daily and red meat once, maybe twice a week. There is iron in there which boosts my red cells which in turn boost my energy. I'm sure many others will respond with worthwhile suggestions. Best of luck to you and we are here whenever you need us. Marcie Sent from my iPad On Jun 26, 2013, at 12:53 PM, Wesley Simon <[email protected]> wrote: > > Morning everyone, > > > I have been silently following this email list for a while. I work in the > computer industry and am well aware that anything we write on here will be > searchable and viewable by the entire world, so I have been hesitant to write. > > My question is about fatigue. Does anyone take anything to combat the > fatigue caused by gleevec? I read about research somewhere in Texas where > they're trying a narcolepsy drug called Nuvigil to combat fatigue in patients > taking gleevec. The research is ongoing and closed to new patients. I > called my doctor's nurse and asked about something to fight this fatigue and > the doctor told the nurse to tell me there is nothing that can be done about > it. I don't believe this. In fact, the research I mention above contradicts > my doctor's view. > > My next appointment is in August, I'd like to have some information to take > with me so that I can have a potential solution in hand when I see the > doctor. I don't have much faith in my doctor. I do believe he understands > what he is supposed to prescribe and what the numbers mean, but I don't think > he has any experience in treating side-effects. > > After two years on gleevec, my number is 0.03% and slowly decreasing. > Unlike many of you, I have no desire to take a drug vacation. My > side-effects, other than fatigue, have been minimal. I'd rather treat the > side-effect than change my dose or change the medication. > > I look forward to your input. > > Have a great day! > > \Wes > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
