Yes I would like to join it. At present he's got me on the lowest dose for a month, so no problems at all. I hope it works for me, but won't know for quite a while. Sorry it didn't work for you, as it sure is better than gleevec~! (on side effects) I have had only five pills so far, lol.
Blessings, Susan -----Original Message----- From: ICANDOALLTTC <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Jun 29, 2013 10:39 am Subject: Re: [CMLHope] My Update Hi Susan and good luck to you. Tasigna quit working for me after only a few months and I had a terrible time on it, however, we have a tasigna group and find that a lot of cml patients are doing great on it. If you would like to join our group give me a heads up. We have a lot of long time survivors with us on this group. Blessings, Jeanie<3 In a message dated 6/25/2013 4:08:57 P.M. Eastern Daylight Time, [email protected] writes: I am soooo happy for you, YAY!!! I took my first tasigna today.....back on after 6 yrs and 3 months off of everything for the cml. Susan "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Jun 25, 2013 3:15 pm Subject: [CMLHope] My Update My tests show a sharp decrease in counts indicating that my Gleevec vacation is going to continue. I will complete my 5th year off Gleevec next week. I will be testing again in December. I will be able to complete 5 ½ years off Gleevec. YEAH!! For those still struggling with issues, I remember you daily during my reflection period. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present 11/8 RBC 8 QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 % 2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
