I agree with you as when I started with CML 15 years ago, it was the same for me. I felt like other people were leaving every time I went to see my Oncologist and I was the only one at that particular clinic that had CML at that time. I asked him if there were any support groups, and he told me "No", so I struggled by myself until my son found this site on Google and put me on it. It truly was the best thing that he could have done for me. We really do support one another and that's a good thing. No, I was never offered Myleran. I never even heard of it and was nothing that my doctor mentioned at the time. I'm glad it worked for you for that length of time.
I know that the angels do watch over me as I'm still here and not planning on going anywhere soon. I have been fighting a lot of pain, and that gets me down, but very little they're going to do about that. I don't want any more pain meds that go through the liver as I'm trying to delay the progress of what's going on with that. I really do limit what I take for pain, and have cut out other drugs that could hurt me more. The drug for cholesterol can cause liver disease too, so I quit taking that. I was also on a patch for pain, that can cause liver problems, so I don't use those either. I am trying to beat this thing, and perhaps I will. We all have to fight to win over this CML. Some fight harder then others as they have such side effects from this medicine that we have to take. I am back on a half dose and in a week or so will have my blood work done for my Oncologist and he'll let me know what's happening. He's been in touch with the company that makes it, and their doctor recommended 1/2 dose for now and see where that goes. You take care, my friend, and stay in touch. I'm sending blessings, hugs, love, and angels your way too. We can never have enough help. Millie ----- Original Message ----- From: Skip Duffie To: [email protected] Sent: Sunday, September 01, 2013 5:14 PM Subject: Re: [CMLHope] Re: Back on Gleevec uplifting us all Hi Millie; It is nice to have this group, everyone care deeply about each other. Back in the day, It seemed I was all alone, none of these groups, most people did not even have a computer. The only indication of how thing were going, is how small the group in the cancer centre was getting. Seems like I was the only one who has tried Myleran it was great for about 27 years, I often wonder why no one else has tried it. Maybe Marty might have, he had a bone marrow? You suffered a lot, but drugs are getting better, you have great courage, so combine that combo, you have Millie. My platelet count was 6 hgb was 87 wbc 2.0, my ANC was to low to count, yet I feel great and still have a good quality of life. Keep on doing what your doing and GOD willing you will have a long and productive life. Thanks for the nice wishes and I return them to you with and angelto watch over you From: "[email protected]" <[email protected]> To: [email protected] Sent: Sunday, September 1, 2013 11:14:16 AM Subject: Re: [CMLHope] Re: Back on Gleevec uplifting us all Hi Marty and you are so right. This disease has opened our eyes to the love of others and that is really what counts. Our own families don't really understand what we are going through because we don't look that sick, but his group knows exactly what is happening to us. Thanks for all the uplifting to all. Jeanie<3 In a message dated 8/30/2013 8:56:26 P.M. Eastern Daylight Time, [email protected] writes: Jeanie, Millie, just look at what this disease has done for all of us. We are like a family and all of our love for each other is what really counts. I believe that everything happens for a reason. Perhaps this is our reason. 18's Marty On Fri, Aug 30, 2013 at 4:37 PM, <[email protected]> wrote: Just a note to say I love all of you. Blessings Jeanie<3 In a message dated 8/21/2013 12:00:46 P.M. Eastern Daylight Time, [email protected] writes: Hi Marty Right back to you...I'm sending you hugs for the day and know that we all need love and hugs....18's to you, my friend....Millie ----- Original Message ----- From: Marty Gartenberg To: [email protected] Sent: Wednesday, August 21, 2013 6:46 AM Subject: Re: [CMLHope] Re: Back on Gleevec Hi Millie, I'm reading over some of the previous posts on here. You know what? I love you! 18's Marty On Sun, Aug 4, 2013 at 7:10 PM, C.M. Houtz <[email protected]> wrote: Hi Skip....I try hard to be strong, but, as you know, it isn't always an easy thing to do. I'm so glad that you have fought this CML for all of the years you have. It gives everyone hope that they'll be able to do the same thing. I'm sure you've been on all of the drugs as I have, but at one point the doctor said he could put me back on the Interferon if it ever came to that. Have they done that with you? Just wondering. I wish you many more years of being with your grandson. I know how I love my little ones. I have them ranging from 33 to 4 so I always have little ones in my life. Most are grown now, but my youngest bring me lots of joy when I get to see them. They are living in New Jersey and it is a trip that I can no longer make easily, plus their house is just not set up for me, so it's difficult for me to spend the night and to do the trip in one day is to hard. I am hoping to try it one more time this summer, so we shall see. I think about it anyway. Children are the joy in our lives and grandchildren even better as we can give them back. :>) I gave my 8 year old a quilt when he was here a couple of months ago and he had tears in his eyes. My son, Rick, says that he doesn't let it out of his site. I had made him a small one when he was born, but the other 2 got larger ones and now he has his. I tried to talk him into giving up the baby quilt, so we shall see. It might go to college with him. You take care, Skip. You and Marty are great inspirations to me and others. I always keep you in my prayers as I think it helps.....can't hurt, right? Many hugs and 18's to you and yours, Millie -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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