Hi Beth, Sorry I meant I started on Sprycel in Sept 2009. I was dx in Jan of 2004, was on Gleevec until 2009 when it quit working. I was then on Tasi for a short while in 2009 but it didn't work either, so I was put on Sprycel in 2009. I never was in a trial and had trouble getting my Gleevec in the beginning. I had to pay a huge copayment until I got some help. God was so good to me and now I am doing good except for this pain. I am hoping it will just go away soon. Thanks to everyone for their uplifts. Blessings Jeanie<3 In a message dated 11/20/2013 5:17:51 P.M. Eastern Standard Time, [email protected] writes:
Jeannie, I did not realize you have been on sprycel for 9 years!!! I did not know it was in trials back then...wow...you are my hero....I am sorry about your side pain..Tasi did give me diabetes overnight...blood sugars soared...but went back to normal on sprycel...yet since that 6 months on Tasi I have had to watch all sugar intake so I stay well..just with food and movement.. But I have no doubt it affected my pancreas. You are my hero today....inspiring....as I have been on sprycel 3 years this week. Hope you are having a good day and somehow that pain resolves in your side. Have you found anything that helps your headaches..or pre empts them? Beth -----Original Message----- From: ICANDOALLTTC <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Nov 20, 2013 4:09 pm Subject: Re: [CMLHope] PCR results for Peg and all Hi Peg, Good luck on your journey with Tasi. As you know, my journey with it was not good. It did a good job of lowering my counts but then I had to have blood transfusions so keep a good eye on your blood counts. Starting Tasi started my side pain, and I was tested for pancreatitis, test showed negative, but I think it did something to my pancreas. I was on Tasi for a few months and then it just quit working, but others on it are doing great! My headaches are worse on Sprycel, but I'm sure they all contribute to some type of headaches. In answer to your PCR results my last one was 0.00038068 and my onc assures me I am in complete cytogenetic remission. My blood counts were good also with just a few out of range. The test calls this the BCR able ratio. The one before this one was 0.0026. I am on 100 mgs Sprycel daily. This test results say I am in complete hematological cytogenetic remission. I have been on Spycel since Sept 2004. Make sure to follow all the guidelines for taking the Tasi. and good luck to you. Blessings Jeanie<3 In a message dated 11/19/2013 2:29:16 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Okay, so someone help me out with my latest results...I have been zero for so long that I don't know exactly what this means. After being zero for several years, my results starting coming back trace for the last few months. (We PCR monthly) We were mucking around with the TKI dose so the change from zero to trace was not too surprising. The trace level was too low to count, so no number. The one prior to this month was 0.00019 Ratio, IS 0.0157%, but because they sent it to the wrong lab it is really not useful or comparative, just kind of alerted me that there is a difference between Ratio number and IS number. This month, back at the right lab, it is now 0.053. This lab does not use the International Scale (IS), so this number has no adjustment...it is simply the BCR-ABL/ABL ratio. So, I'm feeling a bit stupid, but, since everything I can find that explains level changes now uses the IS, and this is NOT an IS number, does this still mean that in going from 0.0000 to 0.053 I have just had a two log increase? And if the error factor is 0.5 to 0.05 is 0.053 really significant or can I worry about something else this week! By the way, just started Tasigna low dose, this is day two with a massive headache...anyone else? Thanks! peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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