Peg, it's Millie again. I developed Polimyalgia afte being on Tasigna. It's
quite painful and they run sed tests every three months and keep me on
prednisone, increasing it when needed. Actually, I believe it helps the pain,
but not much. I always say that if it weren't for the pain, I'd be fine.
These doctors don't want to believe that the meds are causing these other
problems, but they are. Also developed Diabetes after going on the Tasigna.
They won't acknowledge that either. Oh well, we can talk about it on here and
know that a lot of us have developed some of the same symptoms from these
drugs. The thing is that we need the drugs to survive, so we have to take
them. Again, have a blessed holiday season and try to have a happy one. I
intend to.
Hugs, 18's and Blessings,
Millie
----- Original Message -----
From: peg
To: [email protected]
Sent: Tuesday, December 17, 2013 10:24 AM
Subject: [CMLHope] Re: Sprycel and Musculoskeletal pain
Hi Michelle,
Sorry I didn't see this post until now, been down my own road for a while.
You are right...Sprycel can cause pain! This was my entire problem with
sprycel. They are absolutely clear that it triggered fibromyalgia in me. I
also believe that it targets weakened points, such as all the areas in my body
that are arthritic due to years of MS. For me the pain, which started two
hours after each dose like clockwork, would last for 17-21 hours and was so
severe it would put me in bed. This was the reason we had gone to a twice a
week dose...so I could block two days a week out of my life to be in a bed
ridden pain fog. When I added lemon juice to the mix the pain almost killed
me, or at least made me wish it could. Dr. P could never really explain the
pain, but it was clear that it was because of Sprycel...as evidenced same as
you with short vacations. Since I am allergic to pain meds, this was the
reason I finally made the switch to low dose Tasigna...but no idea yet if it is
working. I hope you have more success with a lowered dose than i did...for me,
even at 20mg a day, the pain was bad. However, many folks take Sprycel without
this severe a problem, so perhaps your reaction will not be as severe at a
lower dose as mine was. I hope you can get this worked out, pain definitely
alters quality of life!
Fight on!
peg
On Wednesday, December 4, 2013 3:00:05 PM UTC-8, Michele, Loves to Dance!
wrote:
Hi All,
Been down with pain and Thanksgiving; hope you all had a great one.
My new discovery: Sprycel and Musculoskeletal Pain is definitely the
culprit:http://www.leukemiasurvivor.co/2013/12/sprycel-and-musculoskeletal-pain.html
Blessings to all,
Michele
--
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www.LearntoBallroomDanceOnline.com
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