Thanks Peg, I think our doctors don't want us to quit our meds so they don't tell us everything. I'm a big believer in know it all. I read the phamplets from top to bottom. It is bad, but I think if I have something I should know how to treat it. Thanks again for that report. Blessings, Jeanie<3 In a message dated 2/14/2014 11:24:23 A.M. Eastern Standard Time, [email protected] writes:
Jeanie, you would not believe how obscure and hard to find that report was, it looks like it got buried after the clinicals. It may be because it was decided that the nodules were not harmful, I don't know. But like I said in my last post, I would much rather think that is what I have than lung cancer, which is what the radiologist thought it was! And the fact that it appears to be auto-immune, is relevant I think to folks who are having fibromyalgia type pain, as I also was, since fibro is also auto-immune. p On Wednesday, February 12, 2014 12:36:41 PM UTC-8, Jeanie wrote: Hi Peg, I did get the report downloaded and opened, and it make me mad that my onc told me I had nodules on my lung and didn't say anything about treatment. This could be causing the pain in my side. That is a good report and anyone on Sprycel should read this report. Thanks, Jeanie<3 In a message dated 2/12/2014 12:32:59 P.M. Eastern Standard Time, [email protected]_ (javascript:) writes: Hey Jeanie, I am the one the mentioned lung lesions. I found an obscure report from the clinicals on Sprycel where they found this as an auto-immune reaction to Sprycel, that in most folks cleared once Sprycel was stopped. This is what my pulmonary doc thinks is what they are seeing in my lungs. I tried attaching the report to this post but if it doesn't work (they dragged me into this century kicking and screaming) if you or anyone else emails me directly I can send it to you by email. peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (javascript:) To unsubscribe from this group, send email to _CMLHope-u...@CML Hope-u...@<WB_ (javascript:) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@<WB_ (javascript:) . For more options, visit _https://groups.google.com/https://groups_ (https://groups.google.com/groups/opt_out) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
