Hi Greenie,
I would like to meet you when you are up here. When do you arrive and where will you be staying? You will be right in the middle of my month, unfortunately. I go April 16th and then a month later. Let me know more info for possibly connecting.... Thanks and blessings, Susan -----Original Message----- From: Myvety2k <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Mar 21, 2014 8:45 am Subject: Re: [CMLHope] Re: Tough news Hi Susan, Glad things are working out for you. Dr. Altman is the same Doctor that I see. My next appointment with her is May 7th. Grace and I will stay in the area until May 7th when we will return to Florida. Will see my son and Grace with see her two sons and grand kids. Keep us informed. greenie In a message dated 3/20/2014 11:44:05 P.M. Eastern Daylight Time, [email protected] writes: Dear Peg, I am speechless about your most current battles. But I know someone who is not, and so do you. He is right beside you and will never leave you nor forsake you. Psalm 62:1-2 can help you stand strong as you read it and know it is for YOU. I am with you, hugging you BIG <<<<<<xx>>>>>>> and letting you know you are not alone. God bless you and know we are all thinking of and praying for you often. To my other blood brothers and sisters: I finally got my number after waiting a long time in between tests. I am at 23.14 on the bcr/abl test. The wonderful Doctor Jessica Altman at Northwestern and I decided I will try the last med available to me, bosutinib, when I get back from vacation. I go again on April 16th for bloodwork and to get started on the med. She promises the only side effect is diarrhea which can be controlled. Any comments from the peanut gallery who are on bosutinib? After 7 yrs off any drugs I must start again. She told me of the risk of blood clotting for those who go untreated. Also of course going into acute stage. I was so thrilled that my number has stayed the same for a whole year!!! Fight on and 18's, Susan "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -----Original Message----- From: Tracie Camlin <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Mar 20, 2014 8:07 am Subject: Re: [CMLHope] Re: Tough news Peg, Sorry you are struggling. I will keep you in my thoughts and prayers. On Mar 19, 2014 9:06 PM, "peg" <[email protected]> wrote: Hi Guys, Thank you for all the kind words and especially the prayers...I will take that. I learned a long time ago that the worst thing anyone has ever been through is the worst thing they have been through compared to no one else. I know we all have a burden to bear and mine is not any worse that anyone elses! I am working today on staying in the present, because truthfully today is really not any different than before I got the news...it is just making it harder to find my peace and stay centered in that! I do have both Medicare and Medicaid, so cost of my care is not the problem, it is the down time away from my business. I am already on disability. It doesn't pay me much, but I still have a business contract, that is now very tiny, but that keeps us from being homeless. I have not been able in 18 years to take down time from it though, not even a vacation. If I do now I will lose the contract. That is the financial worry I have. Tried to get a refi on our home, but a modification we did a few years ago prevents that. The payment is far lower than what rent is in Southern Calif where I live, but if I could have gotten it a bit lower we would have been okay. Rob, thanks for the great referral, unfortunately it does not apply to us. My husband's aquired brain damage is not from an injury. It was a chemical exposure that took about 30 years to do it's damage, but when it did it took his pancreas and part of his brain. Not enough to be completely dysfunctional, but just enough to be dangerous. He is emotionally about 5 years old and does crazy things that only make sense to him at the time, like the time he put a screwdriver across the high voltage side of our electrical panel, and twice now I have walked in to find the house full of gas! It would be funny if it wasn't so scarey! He can't manage his insulin pump by himself and requires breathing equipment at night. It's a circus some days, but managable. But it all kind of rests on me. Having said all of that...it's not all bad. I had a dear friend, Walter, who when he found out he had metastisize prostate cancer, decided not to tell anyone. I only found out by accident...his wife never did until the end. In that decision, Walter told me that he loved his life and didn't want cancer robbing him of one minute more of it than absolutely required. He believed, and rightly so, that if his wife, children, their spouses, his staff, all knew, it would change his life and how they interacted with him. While my life is not as wonderful as Walter's and everyone already knows I have cancer...this news I got on Friday was keeping me from looking at, and for, the good things in my life! It was like a huge canopy of fear that overshadowed everything. It keeps me from walking by my faith instead of by my sight. And as we know, the storm we see does not come from our faith, whatever that is to each of us! So, this is what I am working on today, and you are all my hope and inspiration! Thank you!! peg On Wednesday, March 19, 2014 10:03:09 AM UTC-7, peg wrote: Hey Guys, After 25 years with an unpredictible disease like MS, I thought I could roll with the punches, but this week really knocked me flat. It would appear, after further consideration, that the lesions seen in both my lungs since August could actually be lung cancer. What the heck??!! This would be the fourth primary, unrelated cancer in three years time! CML and Melanoma in 2010, Gastric Tumor in 2013 (but first seen in retrospect in early 2011)....and now this! We haven't even figured out how to get to the Gastric Tumor yet. I thought we finally reached a good plan for that last month, but this would definitely be a game changer. Looks like the only way they can get a solid answer is going to be with some major surgery....which is the reason that we hadn't been able to get the Gastric Tumor out. Serious health and recovery issues aside for a moment, the down time for major is surgery is an obsticle that could leave my husband and I homeless with no where to turn to. And on top of that, during my hospitalization/recovery there is no one to help my husband, who has brain damage, care for himself...he just can't be in the house alone. Of course....if we no longer have a house....sorry just a bit of dark humor! Lots of questions still, but no answers yet! Think I need a hug! peg -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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