Hi Skip...So sorry it has taken me this long to answer your e-mail, but I've really not been up to much of anything. I have been under Home Care, which stopped this week, and now I'm trying to do things on my own, which isn't easy, but I'm still focusing on what I need to do, and doing it. I even considered Hospice at one time during the week, but that isn't what I want. I need to be able to do better on my own, so that's what I'm trying to do. I look at what Marty is fighting, and Beth, and others, and know that I am not the only one having problems outside of the CML. I have set up taking my own blood for testing with a meter for my blood thinner medication. I do that weekly at this point. The levels have been all over the place, but I can do the meter, and it seems to be working well. Since being diagnosed with liver disease it fluctuates a lot. The home nurse also found a place that my doctor can call and they have a Mobil blood unit that will come to the house and draw blood when needed. That is a big help as going out is becoming very difficult. I went out the other day and ended up with my arms not working again (which is why I was on Home Care), and now I have them working a little. Getting in and out of the car seems to be what is making it difficult and ending up with my arms not working and a whole lot of pain. Yes, I look around and know that there are so many people dealing with more then I am. I try to help as many as I can, and not dwell on me. Most of the time that works. I have a lot of family that turns to me when they need someone to lean on, so figure I'm doing okay in that department. You are an inspiration, Skip, along with Marty and Beth and a lot of others. Thank you for sharing your story with me, and for writing. It meant a lot to me. Hugs, Millie ----- Original Message ----- From: Skip Duffie To: [email protected] Sent: Monday, March 31, 2014 1:48 PM Subject: Re: [CMLHope] FOCUS
Millie Just checking in to see how things are going. I know that the road is tough, and that you have to be on guard all the time. I was talking to an ONC specialist, his comments, were that when you try to feel better you are, and the feel better make all med stronger"". Sometimes allowing us to decrease the amount. " We need help sometimes, so lean on your special god . it can be Jesus, G-D, Buddha, or just to sit and meditate saying a prayer of some kind. way back I joined a soup kitchen, when I had pain I joked with someone less fortunate then me, (believe me there are lots out there). I no longer can do that, so I visit with people in palliative care, in the hospital I spend time in twice weekly BE SAFE MILLIE and as the fox said to the Little Prince. "It is only with the heart one sees rightly, what is essential is invisible to the eye" From the book The Little Prince worth the read if you never have, more common sense in that small book than any other I have read. You will understand much more if you read it On Friday, March 28, 2014 8:25:15 AM, C.M. Houtz <[email protected]> wrote: Hi Skip, I know that I try very hard to do this and for the most part it works, but still have a ways to go. I just have to focus, right? I know that it helps a lot. For two days I haven't been able to use my arms, and then I did focus on today being better, and guess what...it is. I have to work on this more, but want to do the best I can. I know that the mind controls so much of what we feel and I'm determined to let it help me control the pain I'm in. If I can accomplish that, then I'll be happy. Take care Millie ----- Original Message ----- From: Skip Duffie To: [email protected] Sent: Friday, March 28, 2014 7:17 AM Subject: Re: [CMLHope] FOCUS so true, I use this method to avoid drugs and I feel great most times even though I am getting infusions twice weekly SkipD On Thursday, March 27, 2014 6:29:29 PM, Marty Gartenberg <[email protected]> wrote: REMEMBER THAT YOU CAN USE YOUR MIND TO TRY AND CONTROL YOUR BODY, IT IS JUST A MATTER OF FOCUSING. EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... 18's, Marty -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
