Hi Richard and thanks so much for the update. My creatinine has increased also to 1.10. My sugar is also up to 111. I too think it is the drugs. Hang in there and blessings, Jeanie<3 In a message dated 5/8/2014 11:45:46 P.M. Eastern Daylight Time, [email protected] writes:
When I saw my Kidney Specialist about two months ago my creatinine level was up to 1.81 up from 1.59. He was okay with that is still stage 3. I have been told by most of my specialists that most of my issues are the heavy drugs I have/am taking is the major cause. 18's Richard H. On Thursday, May 8, 2014 6:56:43 AM UTC-5, greenie wrote: Hi Susan, I flew into Chicago yesterday to see Dr. Altman, she's going to have a baby. My test came back O.K. but my creatinine was on the high side again it's been they way for years.1.4,1.5,1.3,1.4,.143,1.4 and yesterday 1.51. I was going to tell that I know you but I forgot. When you see her tell her you know me next Wed. She want's me to get blood work down here in 6 month and send her the results. By son and daughter in law and grandson picked me up from Midway and drove downtown. Then he took me to lunch in Schaumburg, then stopped at the mall nearby. Well now it's starting to get close to take off time and we are more then a hour away from Midway. I kept telling him Derek we need to get going, Dad don't worry I'll get you their on time, sure. So we took off and of course the traffic was bumper to bumper so he gets out is GPSand we took every back road in Illinois. Got me to the airport 15 min before take off. They rushed me through the gate and they were boarding when I got their, and that was the last flight out to Fort Myers. It was one of Southwest new plane the guy that was setting next to me just just started as a flight attendant and had one of their GPS and it show our speed of 529 mph and our altitude. We landed 25 min. early and touch down was 159 mph, hard landing but any landing is a good landing I used to fly many years ago. Was a very busy day for me. Grace and I are flying into Chicago on June 10th to see family and leaving July 1st. I will contact you so maybe we can get together for lunch. Take care, greenie In a message dated 5/7/2014 9:50:52 P.M. Eastern Daylight Time, [email protected]_ (javascript:) writes: Hey everyone, I started on bosutinib yesterday at 100 mg. Please keep me in your prayers that this medicine will work and I can stay on it without any stroke symptoms, like has happened with all the rest of the drugs. I am going to Chicago (Northwestern) at least once a month now, next again for a two-week follow-up. It's a one hour and forty minute drive with no slow-downs. I make it a fun day. Last Wednesday my husband made it a business trip and took me along, dropped me off and met again later. It's easier on my nerves when driving downtown! Dr. Altman wants to check my reaction to the lowest dose in two weeks. I'm sure it will be fine...... They also did an EKG on me and it showed that I do have prolongation between heartbeats, just a tad above normal. This could be why I'm so devastatingly tired all the time! I do not want to develop anything worse from the prolongation, so they will give me an EKG each time I go for awhile. Got to do some homework on this. Sure have loved and enjoyed being off all medication for 7 whole years. Dr. Altman says I'm really "special" to have lasted this long. Don't know by that if she means "crazy" or idiotic, or what....it is what it is! Marty, I am standing with everyone to pray you will receive a new kidney soon...and Millie, keep pressing the docs about why all these pains are gripping you and what can they do about it. We have to be pro-active, although I know just getting through the day sometimes is all the "pro-active" we can be!!! Beth, praying for you, too! 18's and hang in there, Susan Zimmerman -----Original Message----- From: C.M. Houtz <[email protected]_ (javascript:) > To: cmlhope <[email protected]_ (javascript:) > Sent: Tue, May 6, 2014 11:54 pm Subject: Re: [CMLHope] No Updates? Hi Richard, I've been thinking the same thing. I hope that it means all if okay. I have been having a lot of Arthritis problems and can hardly move my arms. It hurts to type a lot. from the elbow down I'm fine, but from the elbow up it's so painful to lift my arms or do anything that requires reaching, lifting, etc. What a mess I am.. I try to cope with it, and do some exercises that help, but if it hurts to do them, they tell me not to force it.. Say prayers for Marty, and Beth as I know they're having their own set of problems. If you have any left over, pray that my arms will start working well enough for me to accomplish something. Marty has a weeks worth of tests, doctors, etc. to deal with, and Debbie has her back issues. I know that this is a CML site, but it seems like other things get in the way that we deal with. I do hope all is well with you. I'll keep watching for e-mails from the group, and hope that they will all be good news. Jeanie got kicked off of the Goggle site, and I can't remember why. She was trying to change things and it took her down. I don't think she knows how to get back on. I still e-mail her and we talk that way, but she was a huge asset to our group. I forward her messages to you guys, but she needs to get hooked up directly. I sure don't want to loose touch with anyone. Talk to you soon. Love, Hope, and Prayers, Millie ----- Original Message ----- From: _Richard H_ (javascript:) To: [email protected]_ (javascript:) Sent: Tuesday, May 06, 2014 11:40 PM Subject: [CMLHope] No Updates? I haven't seen any new or responses for almost a week. I hope everyone is okay and just busy with life. Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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