Hi Beth,

My surgery went fine but I am now suffering from a bad infection in my
lungs and a constant low grade fever and headache with chills. I am on
anitbiotics but if it doesn't get better I will pay urgent care a
visit.

18's

Marty

On Wed, Jul 2, 2014 at 11:55 PM, bkbarney via CMLHope
<[email protected]> wrote:
> Thank you Jeannie. So good to hear from you. I am still on sprycel. Lowered
> the dose quite a bit...we will see in 2 months how things go. In the mean
> time, going to a rheumatologist/ and a neuro person for the elevated cpk
> stuff and other abnormal blood work...I am believing it will get better in
> time. Like right now, I am actually on the computer for a few minutes.....I
> could not do this a month ago....slow and steady progress healing the
> back..hopefully the same will be true with the other issues once they are
> better understood and treated.
>
> ditto to everything you said about Millie....
>
> and Marty, thinking of you and sending you lots of positive healing prayers.
> How did your most recent surgery go? Darm fistula...Take care..
>
>
> Big hug to all,
> Beth
>
>
> -----Original Message-----
> From: ICANDOALLTTC via CMLHope <[email protected]>
> To: cmlhope <[email protected]>
> Cc: houtz <[email protected]>
> Sent: Sat, Jun 28, 2014 8:11 am
> Subject: Re: [CMLHope] Millie Beth Greenie Marty and all
>
> Hi Beth and good to hear from you.  I am so sorry you can't use Sprycel as
> it saved my life, I know.  I was really sick when my onc put me on it and in
> the hospital.  I know it could be destroying my liver, but we have no choice
> that I can see.
> I pray that you will find a med that will suit your body.
> Living each day as it comes works for me.  Keeping my mind busy is a great
> help.
> I am so sad about Millie as she fought the good fight with me every day.
> She would cook up some good meals and always invited me to supper, even
> though she lived in PA and I in FL.  Her quilts are so beautiful just like
> she is.
> We are all fighting the good fight as CML warriors, and we will fight on.
> Hopefully they will find a cure for the future generations on the way.
> Greenie, the carotid artery is the one they put my catheter in when they
> cleansed my blood.  I had this done twice so mine should be pretty clean by
> now; at least the right side.  The doctor who did the surgery told me it
> would be ok as long as he didn't puncture my lung; hehe.  Glad your wife
> came through the surgery and many happy years to you both.
> Marty: Thanks so much for all you are doing for Millie.  We are all in grief
> over her, but God is the ruler over life and death, not us or our doctors at
> least that is my view.
> I'm sure she knows we are all there by her side in Spirits and Love.
> Wishing all a great day and many blessings,
> Jeanie<3
>
> Chris, I am praying for you and your family; I know my son will go through
> this some day also.  Keep in touch when you can.  I feel I know you as
> Millie always talked about you and how much you were a blessing to her.
> My prayers and love to you,
> Jeanie<3
>
>
>
> In a message dated 6/27/2014 8:13:26 P.M. Eastern Daylight Time,
> [email protected] writes:
>
> Dear Greenie,
> The carotid artery??I am saying prayers for your wife, and for Marcie, and
> for MIllie and her family, and for Marty.....that your surgery went well
> with the fistula stuff...and Richard, I am so glad to hear from you, thanks
> for posting and keeping us apprised of how you are doing, and Jeannie,
> thinking of you on your vacation..Michelle- dancing.....
>
> Marty,
>  Millie did get your beautiful roses. I spoke with her son, not Chris, Rick
> or Richard maybe, cannot remember now, but he was so gracious and so
> appreciative of everyone's prayers and good wishes.....she is comfortable
> and sleeps the day...things may proceed quickly....I let him know what she
> has meant to me, and so many others who sojourn together on this
> journey....she has always been such an inspiration with a positive
> attitude.....too much to write here...I/ll just tear up....
>
> it feels like many of us are struggling right now, ebbs and flows...I wish
> all of you peace, and that each one of you feels the love of one another.
>
> I will see my oncologist Wednesday. Need to find an alternative to sprycel.
> It's causing significant auto immune issues and continued muscle wasting in
> me..as I have tried the three others except Ponatanib..which feels risky to
> me....I am wondering if anyonehas heard of anything alternative to try or
> that is in other trials.. I am doing research on my own but just wanted to
> ask the group..
>
> Have a good weekend,
>
> Beth
>
>
>
>
>
> -----Original Message-----
> From: Richard H <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Thu, Jun 26, 2014 9:29 pm
> Subject: Re: [CMLHope] Millie
>
> My prayers to all.
> I haven't posted lately, but do check the group daily.  I haven't posted any
> results because the were only slightly higher than 4 months ago.  I have
> some additional problems, so my ONC is retesting and re-evaulating which TKI
> would be best for me.  I visited my VA Primary Doctor today and the good
> news is that 4 TKI's my ONC has suggested are available through their
> pharmacy program.  I will see my ONC in 2 weeks and I will be able to
> express my concern about the various adverse side effects I need to avoid
> because of other health issues.  I have also the newrst regional Cancer
> Center within an hour's drive.  New Labs, Two CML specialists, and my ONC's
> offices are now part of it..  My ONC has agreed to set up a consulting
> appointment if I wanted one.
> I will post results when my future direction is determined.
>
> Richard H.
>
> On Thursday, June 26, 2014 9:52:18 PM UTC-5, caselmar wrote:
>>
>> Greenie, I forgot to sign my name. Chemo brain. It's Marcie and you and
>> Grace are on our official prayer list.
>>
>> Sent from my iPhone
>>
>> On Jun 26, 2014, at 10:10 PM, Myvety2k via CMLHope
>> <[email protected]> wrote:
>>
>> Thank you for your concern, her name is Grace.
>>
>> greenie
>>
>> In a message dated 6/26/2014 9:06:51 P.M. Eastern Daylight Time,
>> [email protected] writes:
>>
>> Greenie, thoughts and prayers for your wife to have a speedy and complete
>> recovery. Isn't her name Grace?  Hang in there. Everyone will be thinking of
>> you.
>>
>> Sent from my iPad
>>
>> On Jun 26, 2014, at 8:50 PM, Myvety2k via CMLHope
>> <[email protected]> wrote:
>>
>> WOW,  did I mess up on that message.  YES, everyone in this CML group and
>> their care givers are outstanding, and my wife had the surgery on the vain
>> that runs along the side of her neck today.  It was 98 to 99% blocked and
>> her Doctor did a great job, but I can't remember what the name of the vain
>> is.  Hoping she will come home tomorrow because she's my caregiver and
>> without her I have no idea what I would due without her.  I will say a
>> special pray for Millie tonight along with one for my wife.  It's so sad to
>> hear about one of our CML friends leaving us. My boss said to me one time,
>> he said, that no one wants to die but everyone wants to go to heaven.  I
>> guess we will all meet their some day.  I think I better go to bed I've been
>> up most of the night and day, I'm not making much sense.
>>
>> greenie
>>
>> In a message dated 6/26/2014 6:06:30 P.M. Eastern Daylight Time,
>> [email protected] writes:
>>
>> Hi Greenie, and Beth and everyone else:
>>
>> Actually we are all OUTSTANDING! We help each other and that is what
>> makes all of us outstanding.
>>
>> I am only living up to a promise that I once made to GOD. I have
>> already discussed this with everyone. I would never want anyone to
>> ever have to go through what I did, but if you do have to then you
>> should be compleatly informed about everything, the good, the bad and
>> the ugly because the more you know about something the better off you
>> will be.
>>
>> Now isn't this exactly what this group is all about? One person
>> helping and caring about another person.
>>
>> Now for Beth,
>>
>> I do have Millie's phone number but maybe it is better that no one
>> calls her yet because she sleeps a lot and it may disrupt her. Why not
>> leave personal messages in those greeting cards we are all going to be
>> sending her. I guess that when the time is right her son Chris will
>> let us know.
>>
>> 18's, everyone, and I want to personally thank everyone that will be
>> sending Millie those greeting cards, I'm sure that she will love to
>> hear from all of us.
>>
>> Anyway, I have to go in to the hospital tomorrow morning for more
>> surgery on my arm. The fistula is giving me some more problems and it
>> has to be operated on. If I can not post for the next few days you
>> will understand why.
>>
>> Hopefully before too long I will get that kidney transplant. I also
>> want to thank everyone for their thoughts and prayers.
>>
>> 18's, again.
>>
>> Marty
>>
>> On Thu, Jun 26, 2014 at 4:29 PM, Myvety2k via CMLHope
>> <[email protected]> wrote:
>> > Marty,   you  are  outstanding ........
>> >
>> > greenie
>> >
>> > In a message dated 6/26/2014 3:19:16 P.M. Eastern Daylight Time,
>> > [email protected] writes:
>> >
>> > OK now for some information about our dear friend Millie.
>> >
>> > Actually, I never knew that Mildred was her middle name and her first
>> > name is actually Claudia.
>> >
>> > Anyway, I sent her a dozen beautiful red roses through an on line
>> > flower delivery service. I only had the address of the hospital she
>> > was in at the time and used Millie Houtz as the one to have them sent
>> > to. I was just called by the flower delivery service and they said
>> > that there was no one at the hospital by the name of Millie Houtz.
>> >
>> > The flower delivery service called the hospital and were notified that
>> > there was a person by the name of Claudia Houtz but she was
>> > discharged. Upon further investigation I found her home address but it
>> > is a PO Box and the flower delevery service does not deliver to PO
>> > Boxes.
>> >
>> > So back to the drawing board once more: I then found out that Claudia
>> > is still in that same facility but is now in hospice. With this new
>> > information I called the flower delivery service and gave them the
>> > proper information so my flowers will be delivered to Claudia in the
>> > next few minutes.
>> >
>> > I was also able to get the phone number for the hospice unit and was
>> > finally able to speak to Christopher her son. Claudia was fast asleep
>> > and of course I didn't want to disturb her. However, I have the
>> > address if you would like to send her greeting cards or whatever you
>> > would like to send to her.
>> >
>> > Her name and address is:
>> >
>> > Claudia M. Houtz
>> > 2455 Blackriver Road
>> > Room 6
>> > Bethlehem, PA 18015
>> >
>> > Christopher said that he will keep us informed about "Millie"
>> >
>> > I truly wish her 18's and also to everyone that is reading this.
>> >
>> > Please if you could make sure to send her a card, I know it will make
>> > her feel better to know just how much we all care about her.
>> >
>> > GOD bless all of you.
>> >
>> > Again, 18's
>> >
>> > Marty
>> >
>> > On Tue, Jun 24, 2014 at 11:14 PM, Marty Gartenberg <[email protected]>
>> > wrote:
>> >> Hi Again Chris,
>> >>
>> >> I just sent Millie a special gift. Be on the lookout for it. It should
>> >> arrive on Thursday between 9:00 and 5:00. Please let her know. I know
>> >> it will cheer her up.
>> >>
>> >> 18's,
>> >>
>> >> Marty
>> >>
>> >> On Tue, Jun 24, 2014 at 10:31 PM, Marty Gartenberg <[email protected]>
>> >> wrote:
>> >>> Hi Chris,
>> >>>
>> >>> We know all about what happened with your dad. Millie often spoke
>> >>> about it, but she told me that she had accepted it. How many times she
>> >>> spoke about you. You are indeed her life. She would always mention
>> >>> about how much you were helping her, and everything that you were
>> >>> doing for her, and how much she loved you. She would "beam" whenever
>> >>> she wrote about you.
>> >>>
>> >>> In the time that I met her (on here) we got into many conversations,
>> >>> mostly about you, so I know how you must feel. Her always suffering
>> >>> from the terrible pain and having to deal with it until your name came
>> >>> up. She was like a brand new person whenever she would talk to me
>> >>> about you. I have had many personal conversations with her. She was
>> >>> always praying for me and everyone else here. We were and still are
>> >>> praying for her. She is a very, very, very good person.
>> >>>
>> >>> Chris please keep us and her informed. I can honestly say that we all
>> >>> love her dearly. I would like to send a special prayer her way. I'm
>> >>> sure that she has already seen it because I have sent it to several
>> >>> people on here, but this is especially for her from me.
>> >>>
>> >>>                                            "MILLIE'S PRAYER"
>> >>>
>> >>> Eternal GOD, source of healing, out of my distress I call upon you.
>> >>> Help me to sense your presence at this difficult time. You have
>> >>> already sent me gifts of your goodness: The skill of my physician, the
>> >>> concern of others who help me, the compassion of those I love, and who
>> >>> love me.
>> >>>
>> >>> I pray that I may be worthy of all these, today and in the days to
>> >>> come. Help me to banish all bitterness; let not despair overcome me.
>> >>> Grant me patience when the hours are heavy; give me courage whenever
>> >>> there is hurt or disappointment.
>> >>>
>> >>> Keep me trustful in your love, O GOD. Give me strength for today, and
>> >>> hope for tomorrow. To your loving hands I commit my spirit when asleep
>> >>> and when awake. You are with me; I shall not fear. Help me, O GOD, in
>> >>> my time of need.
>> >>>
>> >>> Now Chris, something from me again to her.
>> >>>
>> >>>                                           A Happy Everything.
>> >>>
>> >>> May you always know how appreciated you are.
>> >>> May you never forget what a blessing you've become to a world that
>> >>> could use more people like you.
>> >>>
>> >>> May you reap the rewards of kindness
>> >>>
>> >>> May your sunshine always shine through
>> >>>
>> >>> May love walk by your side.
>> >>>
>> >>> May friendship sing in your smile
>> >>>
>> >>> May opportunity remember to knock on
>> >>> your door and surprise you once in a while.
>> >>>
>> >>> May your memories be ones that you
>> >>> wouldn't trade.
>> >>>
>> >>> May your hopes and dreams find ways of coming true. May
>> >>> You never forget how dearly I wish a Happy...'Everything' for you.
>> >>>
>> >>> Please Chris if you could read this to her.
>> >>>
>> >>> 18's,
>> >>>
>> >>> Marty
>> >>>
>> >>>
>> >>>
>> >>>
>> >>>
>> >>>
>> >>>
>> >>> On Mon, Jun 23, 2014 at 11:43 PM, C.M. Houtz <[email protected]> wrote:
>> >>>> Evening,Please make sure that everyone gets this,here is the hospital
>> >>>> address and room number
>> >>>> St Lukes University Health Network 801 Ostrum st. Bethlehem,PA 18015
>> >>>> room
>> >>>> 802
>> >>>> Please empty all of the  card stores in all the states where you live
>> >>>> and
>> >>>> send them to Bethlehem.
>> >>>>  And in closing this evening and please forgive me for being selfish
>> >>>> here I
>> >>>> must be honest and say that I am having a very hard time with all of
>> >>>> this .I
>> >>>> have accepted the fact  that she will be leaving and not be in any
>> >>>> pain
>> >>>> anymore,but when my dad and I get home he goes upstairs and goes
>> >>>> about
>> >>>> like
>> >>>> everything is normal and he has always been that way.But I look
>> >>>> around
>> >>>> at
>> >>>> this quiet empty house that I grew up in and have lived in my whole
>> >>>> life
>> >>>> knowing that mom,my best friend, is not coming home.As I am
>> >>>> surrounded
>> >>>> by
>> >>>> her in every room.I am sorry if I rambled I just want to say thank
>> >>>> you
>> >>>> to
>> >>>> all for being a friend with my mom.
>> >>>>
>> >>>> Chris
>> >>>> ----- Original Message ----- From: "Marty Gartenberg"
>> >>>> <[email protected]>
>> >>>> To: <[email protected]>
>> >>>> Sent: Monday, June 23, 2014 7:38 PM
>> >>>> Subject: Re: [CMLHope] Millie
>> >>>>
>> >>>>
>> >>>>
>> >>>> Yes Chris, would you kindly post Millies address? We all would like
>> >>>> to
>> >>>> send her some cards, I'm sure that it would make her feel better.
>> >>>>
>> >>>> All of our prayers are with her and you. She always spoke so highly
>> >>>> about
>> >>>> you.
>> >>>>
>> >>>> 18's,
>> >>>>
>> >>>> Marty
>> >>>>
>> >>>> On Mon, Jun 23, 2014 at 6:34 PM, bkbarney via CMLHope
>> >>>> <[email protected]> wrote:
>> >>>>>
>> >>>>> Dear Chris and Family,
>> >>>>>
>> >>>>> I too so miss our Millie.Your mother is a wonderful human being and
>> >>>>> we
>> >>>>> treasure her here, her stories, her spirit, etc.. I would love to
>> >>>>> send
>> >>>>> her
>> >>>>> a
>> >>>>> card etc and wondered if I could get her address...Please give her a
>> >>>>> big
>> >>>>> hug
>> >>>>> from me, she's like family....warmest regards...Beth
>> >>>>>
>> >>>>>
>> >>>>> -----Original Message-----
>> >>>>> From: icandoallttc via CMLHope <[email protected]>
>> >>>>> To: cmlhope <[email protected]>
>> >>>>> Cc: C.M. Houtz <[email protected]>
>> >>>>> Sent: Mon, Jun 23, 2014 6:26 am
>> >>>>> Subject: Re: [CMLHope] Millie
>> >>>>>
>> >>>>> Dear Chris and family
>> >>>>>
>> >>>>> She has told me all about you and family and I hope And pray she
>> >>>>> gets
>> >>>>> better.
>> >>>>> She has been a part of my online family for a long while now. Her
>> >>>>> stories
>> >>>>> on
>> >>>>> her
>> >>>>> cooking, family and quilting have thrilled me time and time again
>> >>>>> Give her my love and kisses.  Tell her we miss her so much.
>> >>>>> Love Jeanie ❤️
>> >>>>> Sent from my iPhone
>> >>>>>
>> >>>>>> On Jun 22, 2014, at 12:02 PM, "C.M. Houtz" <[email protected]> wrote:
>> >>>>>>
>> >>>>>> Good morning,I will be brief as getting through writing this
>> >>>>>> message
>> >>>>>> will
>> >>>>>> be
>> >>>>>
>> >>>>> hard enough.The short of the long is her liver is failing and short
>> >>>>> of
>> >>>>> a
>> >>>>> transplant which she will not get, my brothers and family will be
>> >>>>> coming
>> >>>>> togther
>> >>>>> to decide with mom how she wants to move forward with being as
>> >>>>> comfortable
>> >>>>> and
>> >>>>> as happy as possible.
>> >>>>>>
>> >>>>>> Good Day, Chris
>> >>>>>> ----- Original Message ----- From: "Marty Gartenberg"
>> >>>>>> <[email protected]>
>> >>>>>> To: <[email protected]>
>> >>>>>> Sent: Saturday, June 21, 2014 7:54 AM
>> >>>>>> Subject: [CMLHope] Millie
>> >>>>>>
>> >>>>>>
>> >>>>>>> Has anyone heard anything from or about Millie. I do hope that she
>> >>>>>>> is
>> >>>>>>> doing well. I pray for her speedy recovery each and every day.
>> >>>>>>>
>> >>>>>>> 18's,
>> >>>>>>>
>> >>>>>>> Marty
>> >>>>>>>
>> >>>>>>> --
>> >>>>>>> --
>> >>>>>>> [CMLHope]
>> >>>>>>> A support group of http://cmlhope.com
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>> [CMLHope]
>> A support group of http://cmlhope.com
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> --
> [CMLHope]
> A support group of http://cmlhope.com
> -------------------------------------------------
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> [CMLHope]
> A support group of http://cmlhope.com
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> [CMLHope]
> A support group of http://cmlhope.com
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> [CMLHope]
> A support group of http://cmlhope.com
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-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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