Hi Susan and so glad you are doing so well on the new med. I got my remission after only a few months on Sprycel. I am so happy that these new meds were developed as they have saved my life three time as of this date. Good luck, Jeanie<3 In a message dated 8/7/2014 10:01:30 A.M. Eastern Daylight Time, [email protected] writes:
Hello Marty, Marcie and Skip, along with all the rest, So sorry to hear about your car acccident, Marcie! You truly did have your angel watching over you. Marty, still praying for your kidney to be donated....there's one out there for you, I just know it! Skip, good advice to those who might need the infusions about do they know how to treat shock....guess you can be thankful you are not in the hospital as it stands! Good news on my front - in three months on bosutinib (bosulif) at 100 mg, I have gone from 9.0 IS for the bcr/abl testing down to 1.70!!! I truly know this is unheard of in the treatment. I am one blessed person! I still deal with lack of energy and slight nausea once in a while, so got some medication for the nausea. My blood pressure was affected so now am on med for that....trying hard to get a handle on the diabetes numbers to get and stay as normal as possible. (What is normal for any of us???) May you all have a wonderful week as you concentrate on the positive instead of the negative. Hooray! I am also excited to meet David and Grace Greenburg, (greenie) coming up this month! Here's a thought: "If the people around you were dependent on your WORDS for nourishment, would they be dying of malnutrition?" 18's, Susan F. Zimmerman -----Original Message----- From: margood18 via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Aug 7, 2014 9:46 am Subject: Re: [CMLHope] I haven't seen any poste lately Skip, so glad you are starting to feel better. You give me hope that I can keep going a long time with this disease. Are you all settled in your new apartment? Stay well. Marcie -----Original Message----- From: 'Skip Duffie' via CMLHope <[email protected]_ (mailto:[email protected]) > To: cmlhope <[email protected]_ (mailto:[email protected]) > Sent: Thu, Aug 7, 2014 8:47 am Subject: Re: [CMLHope] I haven't seen any poste lately Hello Marty, I am sorry for not posting much, I am just now starting to recover, I had that stint in the Hospital and when I got out , I went for my regular infusions. The red cells went great but then I had a very bad reaction to the platelets. They had to stop the infusion have an investigation, before I could receive any more platelets, I ended up with just 1 platelet yes 1. One platelet is the same as having 10. The machine cannot tell the difference from 0 or 10. I did not think I was getting out of this one, but here I am feeling not to darned bad. My advice to anyone getting regular infusions (platelets, red cells) check to see if they are prepared for shock. Marty I know your having a hard time as well, my prayers are for all us who face this dragon every day. SkipD (longest survivor in the world as far as we can tell) diag 1977 They are sure I had it longer but not just diag. On Thursday, August 7, 2014 1:15:18 AM, Marty Gartenberg <[email protected]_ (mailto:[email protected]) > wrote: Is everyone alright? I haven't seen anything poster for nearly two weeks??? 18's, Marty -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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