Hi Marty and all, Yes that is so right; I have had to fight for just survival in and out of the hospital. My PCD doesn't care what he prescribes in reference with Sprycel; if I tell him I can't take it, he just says it won't hurt. I had some bad news on platelets; the have risen to 457,000 but the onc says not enough to worry about, however, I have had my platelets jump into the millions is just a short time. He is giving me 6 weeks to see what is going to happen. Pray for the best. My WBC was 7.87 Only thing out of wack was MCHC 31.7 low range 32-36.8 RDW 54.3 high range 36.8-46.1 Hemoglobine 13.7 range 11.4-15 Mean Cell Volume 96 high range 80-94 Potassium 4.8 high range 3.4-4.5 Glucose 106 Creatinine 1.1 high range 0.5-1.0 Everything else in normal range My Anc was 1.5 Any comments? My daughter took me and we were joined in lunch by my granddaughter and great granddaughter and great grandsons. Had a great time. I hope everyone is good this morning. Blessings Jeanie<3 In a message dated 8/10/2014 9:19:28 P.M. Eastern Daylight Time, [email protected] writes:
Jeanie, I wish you the best. I know that everything will be in your favor. Good luck with your blood test tomorrow. By the way the next time that the lab technician makes a mistake not only for not taking those two tubes, you be sure to make a formal complaing against the one that did it. Because of it you had to get stuck again. How would they like it if it were them? You are your own best advocate. Remember that the squeeky hingde gets the oil. Don't ever be afraid to open up your mouth no matter what. This once happened to me but it was during my bone marrow transplant and I almost died. I did make several complaints to find out the lab tech also did it to several other patients. I spoke with the lab manager and this tech was finally fired. When anything effects your health then you have the right to have things go smoothly, and if that means complaining then that is what you do. Man does this make me mad. GOD bless you Jeanie. 18's, Marty On Sun, Aug 10, 2014 at 6:13 PM, ICANDOALLTTC via CMLHope <[email protected]> wrote: > Hi Susan and all my CML warriors, > I am excited about going to get my blood test tomorrow! > I haven't been for 6 months and that is the longest I have ever been going > to see my onc. My PCD did do a blood test and all was good so hoping all is > good tomorrow. > I also get a PCR done when I go; so looking forward to seeing those results, > however they won't be in for a few weeks after the blood has been drawn. > Did I tell you the story about going to my onc and having the blood drawn?it > goes like this. > I always go to the blood draw center and get my blood work done before > seeing my onc. I was called in and the nurse started drawing my blood. > Well, she only took 1 vial of blood and I was wondering as they always take > two. > So I saw my onc about 1 hour later; he was upset and come to find out, they > hadn't done the blood for the PCR. I had to go back to the blood draw and > have another vial taken. > Now I have to make sure they are taking 2 vials when I go. I pray that I am > still in remission. > I hope everyone is good tonight. > I am good and am going to try to get a good night's sleep for my adventure > tomorrow. > Blessing > Jeanie<3 > > > In a message dated 8/7/2014 11:51:13 A.M. Eastern Daylight Time, > [email protected] writes: > > Jeanie, > > It is so good to know you also got fast results!!! We have so much to be > thankful for. Have a great day! > > Susan F. Zimmerman > > > -----Original Message----- > From: ICANDOALLTTC via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Aug 7, 2014 11:40 am > Subject: Re: [CMLHope] Here's some posts! > > Hi Susan and so glad you are doing so well on the new med. I got my > remission after only a few months on Sprycel. I am so happy that these new > meds were developed as they have saved my life three time as of this date. > Good luck, > Jeanie<3 > > In a message dated 8/7/2014 10:01:30 A.M. Eastern Daylight Time, > [email protected] writes: > > Hello Marty, Marcie and Skip, along with all the rest, > > So sorry to hear about your car acccident, Marcie! You truly did have your > angel watching over you. > > Marty, still praying for your kidney to be donated....there's one out there > for you, I just know it! > > Skip, good advice to those who might need the infusions about do they know > how to treat shock....guess you can be thankful you are not in the hospital > as it stands! > > Good news on my front - in three months on bosutinib (bosulif) at 100 mg, I > have gone from 9.0 IS for the bcr/abl testing down to 1.70!!! > I truly know this is unheard of in the treatment. I am one blessed person! > I still deal with lack of energy and slight nausea once in a while, so got > some medication for the nausea. My blood pressure was affected so now am on > med for that....trying hard to get a handle on the diabetes numbers to get > and stay as normal as possible. (What is normal for any of us???) > > May you all have a wonderful week as you concentrate on the positive instead > of the negative. Hooray! I am also excited to meet David and Grace > Greenburg, (greenie) coming up this month! > > Here's a thought: "If the people around you were dependent on your WORDS > for nourishment, would they be dying of malnutrition?" > > 18's, > Susan F. Zimmerman > > > > -----Original Message----- > From: margood18 via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Aug 7, 2014 9:46 am > Subject: Re: [CMLHope] I haven't seen any poste lately > > Skip, so glad you are starting to feel better. You give me hope that I can > keep going a long time with this disease. Are you all settled in your new > apartment? Stay well. > > > Marcie > > > -----Original Message----- > From: 'Skip Duffie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Aug 7, 2014 8:47 am > Subject: Re: [CMLHope] I haven't seen any poste lately > > Hello Marty, > I am sorry for not posting much, I am just now starting to recover, I had > that stint in the Hospital and when I got out , I went for my > regular infusions. The red cells went great but then I had a very bad > reaction to the platelets. They had to stop the infusion have an > investigation, before I could receive any more platelets, I ended up with > just 1 platelet yes 1. One platelet is the same as having 10. The > machine cannot tell the difference from 0 or 10. I did not think I was > getting out of this one, but here I am feeling not to darned bad. > My advice to anyone getting regular infusions (platelets, red cells) check > to see if they are prepared for shock. > Marty I know your having a hard time as well, my prayers are for all us who > face this dragon every day. > SkipD (longest survivor in the world as far as we can tell) diag 1977 > They are sure I had it longer but not just diag. > > > On Thursday, August 7, 2014 1:15:18 AM, Marty Gartenberg <[email protected]> > wrote: > > > Is everyone alright? I haven't seen anything poster for nearly two weeks??? > > 18's, > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this 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