Hi Elizabeth. I am on Tasigna. Whenever I do anything involving physical activity, like mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then almost instantly, I start sweating profusely, especially in the face and around the neck and it isn't long after that, when I start running out of steam. It was like that too when I was taking Gleevec. So, I figure that this is part of the deal.
Peter On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote: > > We've had some hopeful news. Nick's hemoglobin is moving up a little. > His Oncologists decided to lower the amount of Gleevec per week. Nick's > feeling so much better, too. Sure hope the hemoglobin will continue to > move back to a normal level. We are thankful to have a very thoughtful > Oncologist who keeps up with all the latest medical information on CML. > > Thank you all for sharing your updates and information on how different > CML treatments affect you. Nick sweats a lot. He has to keep hydrated > especially with this high heat. Do any of you sweat perfusely? > > > On Sunday, August 24, 2014 5:26 AM, "[email protected] > <javascript:>" <[email protected] <javascript:>> wrote: > > > [email protected] > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > > > - Greenie and Susan > > <https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#group_thread_0> > > - 4 Updates > > Greenie and Susan > <http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest&utm_medium=email> > > Marty Gartenberg <[email protected] <javascript:>>: Aug 23 08:41AM -0400 > > Hi Susan, > > Praying for you. I know that GOD listens to my prayers. Things will > get better for you, don't you worry about that. > > When I say 18's you know it means life and that is what your going to > have. A good life! > > So, I double my 18's for you to 36. Two times Chai. > > Marty > > On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope > "Nadia Noles" <[email protected] <javascript:>>: Aug 23 07:20PM > -0400 > > Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read > from cmlhope, but don't post. Today you deserve a big Merci. Nadia > > -----Original Message----- > From: [email protected] <javascript:> [mailto: > [email protected] <javascript:>] On Behalf Of Marty Gartenberg > Sent: Friday, August 22, 2014 7:27 PM > To: [email protected] <javascript:> > Subject: [CMLHope] > > What happened to everyone? I hope that everyone is doing well.. > > 18's, > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > Marty Gartenberg <[email protected] <javascript:>>: Aug 23 10:26PM -0400 > > Thank you Nadia, > > It was nice hearing from you. Why don't you post more often? You are > always welcome here. > > Please stay in touch. > > 18's, > > Marty > > Susan Zimmerman <[email protected] <javascript:>>: Aug 24 12:10AM -0400 > > Marty, > You are precious and I feel your prayers! I think He's about to give me > another rest from medicine, (already!) because of the elevated liver > enzymes. I have decided that is a good thing! I'm sure my numbers are even > lower than 1.70 (last month), so it's all good. I'm looking forward to > getting more energy back. > > > How are things going for you nowadays? No posting about your own issues, > come on and share. I know you need a transplant and I and many others are > praying hard for that to happen soon! > > > So sweet to give me a 36, I give you a 54!!!! > > Susan F. Zimmerman > > > > > -----Original Message----- > From: Marty Gartenberg <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Sat, Aug 23, 2014 8:41 am > Subject: Re: [CMLHope] Greenie and Susan > > > Hi Susan, > > Praying for you. I know that GOD listens to my prayers. Things will > get better for you, don't you worry about that. > > When I say 18's you know it means life and that is what your going to > have. A good life! > > So, I double my 18's for you to 36. Two times Chai. > > Marty > > On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope > > To unsubscribe from this group and stop receiving emails from it, send an > > email to [email protected] <javascript:>. > > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email > to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > Back to top > <https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#digest_top> > > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to [email protected] <javascript:>. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
