Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear is infected. I have been home treating it with hot compresses and etc. Has anyone else had this happen? It is very painful. Yes, I always get really hot if I don't keep my air going. I always spent time in the sun, but now this time is very limited. I had really bad night sweats when I was first dx. I would run a fever, take a tylenol and sweat it off. Then it would come back again. With Sprycel, I don't sweat unless I get really hot. I always thought sweat was another way for the body to expel waste products, so it isn't a bad thing. Sorry to hear some can't take the Sprycel, as it has done wonders for me. We are all different so we have to listen to our bodies and decide along with our doctors advice. Still worried about the high platelets, but don't get tested until the end of Sept. Thanks for the prayers and all; we need them. Pray for all in need at this time. Blessings, Jeanie<3 In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time, [email protected] writes:
On Monday, August 25, 2014 4:04 PM, NICK WOODS <[email protected]> wrote: Thanks, Peter. We think it's part of the body reaction to the medicine, too. You're so right! You do run out of steam when that happens. Elizabeth W. On Monday, August 25, 2014 3:48 PM, Peter <[email protected]> wrote: Hi Elizabeth. I am on Tasigna. Whenever I do anything involving physical activity, like mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then almost instantly, I start sweating profusely, especially in the face and around the neck and it isn't long after that, when I start running out of steam. It was like that too when I was taking Gleevec. So, I figure that this is part of the deal. Peter On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote: We've had some hopeful news. Nick's hemoglobin is moving up a little. His Oncologists decided to lower the amount of Gleevec per week. Nick's feeling so much better, too. Sure hope the hemoglobin will continue to move back to a normal level. We are thankful to have a very thoughtful Oncologist who keeps up with all the latest medical information on CML. Thank you all for sharing your updates and information on how different CML treatments affect you. Nick sweats a lot. He has to keep hydrated especially with this high heat. Do any of you sweat perfusely? On Sunday, August 24, 2014 5:26 AM, "[email protected]_ () " <[email protected]_ () > wrote: [email protected]_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvi ew) _Topic digest _ () _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) * _Greenie and Susan_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#group_thread_0) - 4 Updates () _Greenie and Susan _ (http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest&utm_medium=email) Marty Gartenberg <[email protected]_ () >: Aug 23 08:41AM -0400 Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope "Nadia Noles" <[email protected]_ () >: Aug 23 07:20PM -0400 Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read from cmlhope, but don't post. Today you deserve a big Merci. Nadia -----Original Message----- From: [email protected]_ () [mailto:_cml...@googlegroups. com_ () ] On Behalf Of Marty Gartenberg Sent: Friday, August 22, 2014 7:27 PM To: [email protected]_ () Subject: [CMLHope] What happened to everyone? I hope that everyone is doing well.. 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ () To unsubscribe from this group, send email to _CMLHope-u...@ googlegroups.com_ () For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@ googlegroups.com_ () . For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . Marty Gartenberg <[email protected]_ () >: Aug 23 10:26PM -0400 Thank you Nadia, It was nice hearing from you. Why don't you post more often? You are always welcome here. Please stay in touch. 18's, Marty Susan Zimmerman <[email protected]_ () >: Aug 24 12:10AM -0400 Marty, You are precious and I feel your prayers! I think He's about to give me another rest from medicine, (already!) because of the elevated liver enzymes. I have decided that is a good thing! I'm sure my numbers are even lower than 1.70 (last month), so it's all good. I'm looking forward to getting more energy back. How are things going for you nowadays? No posting about your own issues, come on and share. I know you need a transplant and I and many others are praying hard for that to happen soon! So sweet to give me a 36, I give you a 54!!!! Susan F. Zimmerman -----Original Message----- From: Marty Gartenberg <[email protected]_ () > To: cmlhope <[email protected]_ () > Sent: Sat, Aug 23, 2014 8:41 am Subject: Re: [CMLHope] Greenie and Susan Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope > To unsubscribe from this group and stop receiving emails from it, send an > email to _cmlhope+u...@ googlegroups.com_ () . > For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ () To unsubscribe from this group, send email to _CMLHope-u...@ googlegroups.com_ () For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@ googlegroups.com_ () . 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