Hi Maria and good to hear from you.  I have exactly the opposite; my  
platelets have gone up.  I take 100 mgs Spycel daily.  I have been  sick due to 
a 
sore ear and jaw.  I am on antibiotics; don't know if this  has anything to 
do with my high platelets.
Sorry about your insurance; that can be a sad situation and a worry.   So 
far Humana still fills mine each month.
Let us lift each other up as we struggle with our cml.
I hope you get better.
Blessings,
Jeanie<3
 
 
In a message dated 9/2/2014 10:24:55 P.M. Eastern Daylight Time,  
[email protected] writes:

Hello everyone!!!! God bless you all!!! I have been out of touch  for a 
while.  My situation is still complicated, but rather uneventfull.  I went  
to my appointment and my oncologist for the day told me that I  might need 
another bone marrow aspiration and biopsy soon.  She was  worried because my 
platelets went down. The problem is that I have not been  able to take my 
sprycel steadily.  I have skipped some days.  Sprycel acts really strongly on 
my platelet count, and I know this is  what is happenning.  Apparently, I 
have an infection also running around  my system. To make it more 
interesting, I have been out of medication for a  whole week due to insurance 
red 
tape...
I will resume my Sprycel 70 mcg dose daily tomorrow after I do another  CBC.
I have an appointment in two weeks...


Well, please take care!!!! Love you!!!!
Blessings!!! :)
Maria



On Tue, Sep 2, 2014 at 6:17 AM, <[email protected]_ 
(mailto:[email protected]) > wrote:


    [email protected]_ 
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics)
   _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview)
    
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvie
w)  
 
Topic digest  
_View all topics_ 
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics)
  
 
    *   _painful  jaw?_ 
(mip://09eeb4a0/default.html#14835de497b9c0b6_group_thread_0)  - 3 Updates 

_painful jaw? _ (http://groups.g
oogle.com/group/cmlhope/t/15b97eb1004c6008?utm_source=digest&utm_medium=email) 
[email protected]_ (mailto:[email protected]) : Sep 01 10:38AM -0400 
 

Hi Marty and thanks, yes I am going to get an  antibiotic for it. I have 
been treating it with heat and etc. but  no luck. It is something new that 
I 
have never had before, so it  is a worry. I have had strep throat a lot of 
my young adult life,  but not in later years, and it had to be treated with 
 
antibiotics.
How are you?
I am good except for this new  pain. Looking forward to the  fall.
Blessings,
Jeanie<3


In a message dated  8/31/2014 11:31:20 A.M. Eastern Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi Jeanie,  


Having ear infections is not uncommon. However  please don't do nothing 
about it because you don't want it to  spread if it is an infection. Go get 
it 
treated by your doctor  usually an antibiotic is all that you will need and 
once on it you  would start feeling much better in a couple of  days.


Also, having CML and being on any TKI you  should look to avoid the sun. 


I hope that you  will feel better real  soon.


18's,


Marty



On  Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope  
<[email protected]_ (mailto:[email protected]_ 
(mailto:[email protected]) ) >  wrote:


Hello to all my cml warriors,
I have  been sick; my jaw is sore and it feels like my ear is infected. I  
have been home treating it with hot compresses and etc. Has anyone  else 
had this happen? It is very painful.
Yes, I always get  really hot if I don't keep my air going. I always spent 
time in  the sun, but now this time is very limited.
I had really bad night  sweats when I was first dx. I would run a fever, 
take a tylenol  and sweat it off. Then it would come back again.
With Sprycel, I  don't sweat unless I get really hot. I always thought 
sweat was  another way for the body to expel waste products, so it isn't a 
bad  
thing.
Sorry to hear some can't take the Sprycel, as it has  done wonders for me. 
We are all different so we have to listen to  our bodies and decide along 
with our doctors advice.
Still  worried about the high platelets, but don't get tested until the end 
 
of Sept.
Thanks for the prayers and all; we need them.
Pray  for all in need at this  time.
Blessings,
Jeanie<3


In a message dated  8/25/2014 5:05:53 P.M. Eastern Daylight Time,  
[email protected]_ (mailto:[email protected]_ 
(mailto:[email protected]) )  writes:








On  Monday, August 25, 2014 4:04 PM, NICK WOODS <[email protected]_  
(mailto:[email protected]_ (mailto:[email protected]) ) >  wrote:







Thanks,  Peter. We think it's part of the body reaction to the medicine,  
too. You're so right! You do run out of steam when that  happens.
Elizabeth  W.







On Monday,  August 25, 2014 3:48 PM, Peter <[email protected]_ 
(mailto:[email protected]_ (mailto:[email protected]) ) >  wrote:






Hi  Elizabeth.
I am on Tasigna. Whenever I do anything involving  physical activity, like 
mowing the lawn, I am usually ok for the  first 10 or 20 minutes. Then 
almost instantly, I start sweating  profusely, especially in the face and 
around 
the neck and it isn't  long after that, when I start running out of steam. 
It was like  that too when I was taking Gleevec. So, I figure that this is 
part  of the deal.

Peter

On Monday, August 25,  2014 3:53:00 PM UTC-4, Nick wrote: 





We've had  some hopeful news. Nick's hemoglobin is moving up a little.
His  Oncologists decided to lower the amount of Gleevec per week. Nick's  
feeling so much better, too. Sure hope the hemoglobin will  continue to 
move 
back to a normal level. We are thankful to have a  very thoughtful 
Oncologist who keeps up with all the latest  medical information on CML. 


Thank you all for  sharing your updates and information on how different 
CML  treatments affect you. Nick sweats a lot. He has to keep hydrated  
especially with this high heat. Do any of you sweat  perfusely?







On  Sunday, August 24, 2014 5:26 AM, "[email protected]_ 
(mailto:[email protected]) " 
<[email protected]_ (mailto:[email protected]) >  wrote:






[email protected]_  
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum
/cmlhope/topics)  _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overv
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ew)  

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_View all topics_ 
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* _Greenie and Susan_ 
(https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a
#group_thread_0)  - 4 Updates 

_Greenie and Susan _ 
(http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest
&utm_medium=email)  
Marty Gartenberg <[email protected]_ (mailto:[email protected]) >:  Aug 23 
08:41AM -0400 

Hi Susan,

Praying for  you. I know that GOD listens to my prayers. Things will
get better  for you, don't you worry about that.

When I say 18's you  know it means life and that is what your going to
have. A good  life!

So, I double my 18's for you to 36. Two times  Chai.

Marty

On Fri, Aug 22, 2014 at 10:37  PM, 'Susan Zimmerman' via CMLHope
"Nadia Noles" <[email protected]_ (mailto:[email protected]) >: 
Aug 23 07:20PM -0400  

Thank you Marty, I do good, if after 7 yahre on Gleevec.  I love to read 
from cmlhope, but don't post. Today you deserve a  big Merci. Nadia

-----Original Message-----
From: [email protected]_ (mailto:[email protected])  
[mailto:_cml...@googlegroups_ (mailto:cml...@googlegroups) . com] On Behalf 
Of Marty  Gartenberg
Sent: Friday, August 22, 2014 7:27 PM
To: [email protected]_ (mailto:[email protected]) 
Subject: [CMLHope]  

What happened to everyone? I hope that everyone is doing  well..

18's,

Marty

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Marty  Gartenberg <[email protected]_ (mailto:[email protected]) >:  Aug 23 
10:26PM -0400 

Thank you Nadia,

It  was nice hearing from you. Why don't you post more often? You  are
always welcome here.

Please stay in  touch.

18's,

Marty

Susan  Zimmerman <[email protected]_ (mailto:[email protected]) >:  Aug 24 
12:10AM -0400 

Marty,
You are precious and I  feel your prayers! I think He's about to give me 
another rest from  medicine, (already!) because of the elevated liver 
enzymes. 
I have  decided that is a good thing! I'm sure my numbers are even lower  
than 1.70 (last month), so it's all good. I'm looking forward to  getting 
more 
energy back.


How are things  going for you nowadays? No posting about your own issues, 
come on  and share. I know you need a transplant and I and many others are  
praying hard for that to happen soon!


So  sweet to give me a 36, I give you a 54!!!! 

Susan F.  Zimmerman




-----Original  Message-----
From: Marty Gartenberg <[email protected]_ (mailto:[email protected]) >
To: cmlhope <[email protected]_ (mailto:[email protected]) >
Sent: Sat, Aug 23,  2014 8:41 am
Subject: Re: [CMLHope] Greenie and  Susan


Hi Susan,

Praying for you. I  know that GOD listens to my prayers. Things will
get better for  you, don't you worry about that.

When I say 18's you know  it means life and that is what your going to
have. A good  life!

So, I double my 18's for you to 36. Two times  Chai.

Marty

On Fri, Aug 22, 2014 at 10:37  PM, 'Susan Zimmerman' via CMLHope
> To unsubscribe from this  group and stop receiving emails from it, send an
> email to  cmlhope+u...@ _googlegroups.com_ (http://googlegroups.com/) .
> For more options, visit  _https://groups.google.com/d/ optout_ 
(https://groups.google.com/d/optout)  .

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[email protected]_ (mailto:[email protected]) : Sep 01 10:43AM -0400 
 

Hi Marty and yes it was a feast. He makes his own  barbecue sauce with 
green peppers and onion. Yummy to the  tummy!
I used to know all the movie stars names, but now I have to  crank up the 
computer of a mind I have and sometimes the name just  wont come. I have 
always loved movies and especially mysteries.  Betty Grable and Roy Rodgers 
were two of my favorite. A lot of the  youngsters might not know them hehe.
I have loved music also and  taught myself how to play the piano when I was 
young. I sang in  the glee club in school and loved it!
I have a small electric organ  that I play now; not as much as I should.
Pray for  all,
Blessings and Love
Jeanie<3


In a message  dated 8/31/2014 11:36:25 A.M. Eastern Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi again  Jeanie, 


Hey your not the only one that  forgets, so do I. If your above the age of 
65 it's a disease  called CRS. (Can't Remember S**T) Please pardon the  
"French"


I hope that you and your son enjoy  that fish you will be having for lunch. 
With all of those  trimmings it does sound like a  feast.


18's,


Marty



On  Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope  
<[email protected]_ (mailto:[email protected]_ 
(mailto:[email protected]) ) >  wrote:


Forgot, my son caught a big red fish and  he is cooking it for my lunch 
today! Can't wait. He makes grits  and tomato gravy with a delicious tartar 
sauce. He is also making  hush puppies, so it will be a  feast.
Blessings,
Jeanie<3




In a  message dated 8/31/2014 11:06:11 A.M. Eastern Daylight Time,  
[email protected]_ (mailto:[email protected]_ 
(mailto:[email protected]) ) writes:

Hello  to all my cml warriors,
I have been sick; my jaw is sore and it  feels like my ear is infected. I 
have been home treating it with  hot compresses and etc. Has anyone else 
had this happen? It is  very painful.
Yes, I always get really hot if I don't keep my air  going. I always spent 
time in the sun, but now this time is very  limited.
I had really bad night sweats when I was first dx. I would  run a fever, 
take a tylenol and sweat it off. Then it would come  back again.
With Sprycel, I don't sweat unless I get really hot. I  always thought 
sweat was another way for the body to expel waste  products, so it isn't a 
bad 
thing.
Sorry to hear some can't  take the Sprycel, as it has done wonders for me. 
We are all  different so we have to listen to our bodies and decide along 
with  our doctors advice.
Still worried about the high platelets, but  don't get tested until the end 
of Sept.
Thanks for the prayers  and all; we need them.
Pray for all in need at this  time.
Blessings,
Jeanie<3


In a message dated  8/25/2014 5:05:53 P.M. Eastern Daylight Time,  
[email protected]_ (mailto:[email protected]_ 
(mailto:[email protected]) )  writes:








On  Monday, August 25, 2014 4:04 PM, NICK WOODS <[email protected]_  
(mailto:[email protected]_ (mailto:[email protected]) ) >  wrote:







Thanks,  Peter. We think it's part of the body reaction to the medicine,  
too. You're so right! You do run out of steam when that  happens.
Elizabeth  W.







On Monday,  August 25, 2014 3:48 PM, Peter <[email protected]_ 
(mailto:[email protected]_ (mailto:[email protected]) ) >  wrote:






Hi  Elizabeth.
I am on Tasigna. Whenever I do anything involving  physical activity, like 
mowing the lawn, I am usually ok for the  first 10 or 20 minutes. Then 
almost instantly, I start sweating  profusely, especially in the face and 
around 
the neck and it isn't  long after that, when I start running out of steam. 
It was like  that too when I was taking Gleevec. So, I figure that this is 
part  of the deal.

Peter

On Monday, August 25,  2014 3:53:00 PM UTC-4, Nick wrote: 





We've had  some hopeful news. Nick's hemoglobin is moving up a little.
His  Oncologists decided to lower the amount of Gleevec per week. Nick's  
feeling so much better, too. Sure hope the hemoglobin will  continue to 
move 
back to a normal level. We are thankful to have a  very thoughtful 
Oncologist who keeps up with all the latest  medical information on CML. 


Thank you all for  sharing your updates and information on how different 
CML  treatments affect you. Nick sweats a lot. He has to keep hydrated  
especially with this high heat. Do any of you sweat  perfusely?







On  Sunday, August 24, 2014 5:26 AM, "[email protected]_ 
(mailto:[email protected]) " 
<[email protected]_ (mailto:[email protected]) >  wrote:






[email protected]_  
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum
/cmlhope/topics)  _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overv
iew)  
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ew)  

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#group_thread_0)  - 4 Updates 

_Greenie and Susan _ 
(http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest
&utm_medium=email)  
Marty Gartenberg <[email protected]_ (mailto:[email protected]) >:  Aug 23 
08:41AM -0400 

Hi Susan,

Praying for  you. I know that GOD listens to my prayers. Things will
get better  for you, don't you worry about that.

When I say 18's you  know it means life and that is what your going to
have. A good  life!

So, I double my 18's for you to 36. Two times  Chai.

Marty

On Fri, Aug 22, 2014 at 10:37  PM, 'Susan Zimmerman' via CMLHope
"Nadia Noles" <[email protected]_ (mailto:[email protected]) >: 
Aug 23 07:20PM -0400  

Thank you Marty, I do good, if after 7 yahre on Gleevec.  I love to read 
from cmlhope, but don't post. Today you deserve a  big Merci. Nadia

-----Original Message-----
From: [email protected]_ (mailto:[email protected])  
[mailto:_cml...@googlegroups_ (mailto:cml...@googlegroups) . com] On Behalf 
Of Marty  Gartenberg
Sent: Friday, August 22, 2014 7:27 PM
To: [email protected]_ (mailto:[email protected]) 
Subject: [CMLHope]  

What happened to everyone? I hope that everyone is doing  well..

18's,

Marty

-- 
--  
[CMLHope]
A support group of __http://cmlhope.com__ (http://cmlhope.com_/)  
(http://cmlhope.com/)  
------------------------------  -------------------

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Marty  Gartenberg <[email protected]_ (mailto:[email protected]) >:  Aug 23 
10:26PM -0400 

Thank you Nadia,

It  was nice hearing from you. Why don't you post more often? You  are
always welcome here.

Please stay in  touch.

18's,

Marty

Susan  Zimmerman <[email protected]_ (mailto:[email protected]) >:  Aug 24 
12:10AM -0400 

Marty,
You are precious and I  feel your prayers! I think He's about to give me 
another rest from  medicine, (already!) because of the elevated liver 
enzymes. 
I have  decided that is a good thing! I'm sure my numbers are even lower  
than 1.70 (last month), so it's all good. I'm looking forward to  getting 
more energy back.


How are things  going for you nowadays? No posting about your own issues, 
come on  and share. I know you need a transplant and I and many others are  
praying hard for that to happen soon!


So  sweet to give me a 36, I give you a 54!!!! 

Susan F.  Zimmerman




-----Original  Message-----
From: Marty Gartenberg <[email protected]_ (mailto:[email protected]) >
To: cmlhope <[email protected]_ (mailto:[email protected]) >
Sent: Sat, Aug 23,  2014 8:41 am
Subject: Re: [CMLHope] Greenie and  Susan


Hi Susan,

Praying for you. I  know that GOD listens to my prayers. Things will
get better for  you, don't you worry about that.

When I say 18's you know  it means life and that is what your going to
have. A good  life!

So, I double my 18's for you to 36. Two times  Chai.

Marty

On Fri, Aug 22, 2014 at 10:37  PM, 'Susan Zimmerman' via CMLHope
> To unsubscribe from this  group and stop receiving emails from it, send an
> email to  cmlhope+u...@ _googlegroups.com_ (http://googlegroups.com/) .
> For more options, visit  _https://groups.google.com/d/ optout_ 
(https://groups.google.com/d/optout)  .

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Marty Gartenberg <[email protected]_ (mailto:[email protected]) >: Sep 01 
09:32PM -0400  

Hi Jeanie, As I previously said ear infections are very  common and easily
treated with an antibiotic, usually Amoxacyln  which I'm sure you already
know about because of your bouts with  strep  throat.

18's,

Marty




On  Mon, Sep 1, 2014 at 10:38 AM, ICANDOALLTTC via CMLHope  <
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