Susan, that's a great name my daughter's name is Susan. Well here's the deal, some people may agree with me some may not. I started Gleevec January 10th 2000 on 400 mg. I received a rash, I was in one of the first studies in Chicago. They had no idea about the rash so they dropped me down to 300 mg and the rash went away after a few months that has been for over 14 years. Their are side effects everyone gets them, some bad some no so bad. As for a cure for CML their is none, what you get is remission. I am in remission but I still have to take Gleevec I stopped 5 years ago for 23 days and when we did my blood work the cancer cells showed back up in my blood. Their have been a flew people that stopped Gleevec they are cancer feel but not everyone is that lucky. They can do transplants put for me I was to old, 60 at the time and Gleevec wasn't out yet they approved it I think May of 2001. As for this CML group you could have not come to a better place, we have people in this group that I think no more then the Doctor's do, they don't have CML we due. Just hang in their and I sure things will work out for the best. Any question's ask away their are so many good people here that will help you. Good Luck, Greenie Fort Myers, FL. In a message dated 11/12/2014 10:29:59 A.M. Eastern Standard Time, [email protected] writes:
I was recently diagnosed with CML. I had a bone marrow biopsy and started Gleevec last week. I'm seeing an oncologist who I met two weeks ago and seems very competent. My question may be weird but I'm having co-workers, family members etc. saying things to me like "what's the big deal having to take a pill? I have to take an antibiotic for my tooth infection," or "my arm is in a cast from having an operation." Am I being overly sensitive finding these remarks insulting? I just got off the phone with my sister who said, "plenty of people are cancer free and get `cured,' of leukemia." I tried to give a speech about remission and response and CML and it fell on deaf ears. I just think the aggravation I'm feeling can't be a good thing right now. Besides that, I was glad to find this group online and now feel like I'm not so alone. Susan -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
