Hi Beth,

We all have our medical problems but it is the way that we handle them that
either makes us feel better about the care we get or on the other hand our
mental being if we feel that we are failing in the medical care we get.

Having a good attitude is the key to helping ourselves. This is what you
seem to have because like me you are a fighter! May this new year bring you
good health and happiness.

18's to you Beth.

Marty

On Thu, Jan 1, 2015 at 11:33 PM, bkbarney via CMLHope <
[email protected]> wrote:

> Richard,
>
>  Your sister has good advise...Slow and steady and stay positive. Just
> got from a week at Mayo in Rochester. Will go back in a little over a month
> to try and meet with the two docs we hope can help solve the issues I am
> facing. While I am positively pooped, I was constantly reminded how
> grateful I am to have access to good care and to still be walking in to the
> hospital on my own steam. Seeing others so much worse off reminded me of
> the perspective I need to hold..and gratitiude.
>
>  When you don't feel good or your scared, ......sometimes it 's hard to
> find and hold that place of peace and acceptance. I wish 2015 is a really
> good year for everyone here. May gleevec be good to you without too many
> bad side effects. Take good care, Beth
>
>  P.S. Marty..still praying for that kidney...2015!!!
>
>
> -----Original Message-----
> From: Marty Gartenberg <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Thu, Jan 1, 2015 7:36 pm
> Subject: Re: [CMLHope] denosumab
>
>  Yes Susan, it did post but I didn't see it until after I sent her my
> comments. She was actually asking for his email address and when you posted
> it I didn't see it before I sent it to her in my second email to her. Sorry
> about not seeing it before I sent mine out.
>
>  Wishing you a very healthy and happy New Year.
>
>  18's,
>
>  Marty
>
> On Thu, Jan 1, 2015 at 3:40 PM, 'Susan Zimmerman' via CMLHope <
> [email protected]> wrote:
>
>> Marty,
>> Did my e-mail with Dr. Druker's address not post for Ana?  I sent it
>> immediately upon her request.
>>
>>  Blessings and Happy New Year,
>>
>>
>> Susan F. Zimmerman
>> "Look among the nations and watch; be utterly astounded!  For I will work
>> a work in your days which you would not believe, though it were told you."
>>  Hab. 1:5
>>
>>
>> -----Original Message-----
>> From: Marty Gartenberg <[email protected]>
>> To: cmlhope <[email protected]>
>> Sent: Wed, Dec 31, 2014 6:02 pm
>> Subject: Re: [CMLHope] denosumab
>>
>>  Ana,
>>
>>  I forgot to include Dr. Drukers email address  [email protected]
>>
>>  He is a very nice man and he will help you.
>>
>>  18's again,
>>
>>  Marty
>>
>> On Wed, Dec 31, 2014 at 7:51 AM, Ana <[email protected]> wrote:
>>
>>>   THANK YOU VERY MUCH and happy new year!!
>>>  I,ll try to write to dr. Druker, I`m in spain
>>>
>>>
>>>
>>>
>>>  *From:* Marty Gartenberg <[email protected]>
>>> *Sent:* Wednesday, December 31, 2014 3:35 AM
>>> *To:* [email protected]
>>> *Subject:* Re: [CMLHope] denosumab
>>>
>>>   Hi Ana,
>>>
>>> I did some research for you concerning Prolia, and it didn't necessarily
>>> mention anything about taking it while on any TKI's (Gleevec being one of
>>> them) However there was some mention about taking it while having breast
>>> cancer or in men having prostate cancer.
>>>
>>> I am enclosing a link for you to read, and I did read the entire thing
>>> hoping to find anything about Prolia and Gleevec. It is a very long
>>> article, it took me about an hour to read it all.
>>>
>>> I am sorry that I cab't do anything more and I think that you might want
>>> to show this article to your Oncologist for his or her opinion. You could
>>> also run this past Dr. Brian Druker or Dr. Moshie Talpaz for their advice.
>>>
>>> I wish you a very healthy and happy New Year.
>>>
>>> 18's (symbol for life)
>>>
>>> Marty
>>>
>>> http://www.drugs.com/pro/prolia.html
>>>
>>>
>>>
>>> On Tue, Dec 30, 2014 at 3:01 PM, Ana <[email protected]> wrote:
>>>
>>>>   has anyone taken prolia, for osteoporosis, while on gleevec?
>>>>
>>>>  *From:* Richard H <[email protected]>
>>>> *Sent:* Tuesday, December 30, 2014 5:27 AM
>>>> *To:* [email protected]
>>>> *Subject:* Re: [CMLHope] Re: Beth are you back on sprycel?
>>>>
>>>>   Thanks Beth.  Sorry to say my first time around the puffy eyes and
>>>> swollen legs and ankles were resent the 5 1/2 years I was taking Gleevec.
>>>> I lost 55 lbs. after I stopped Gleevec.  I know that 25-30 lbs. was rapid
>>>> fluid loss and I conditioned myself to eat smaller portions at meal and
>>>> snack time. With moderate exercise I was only losing 1-2 lbs. a week.  My
>>>> sister, a geriatric nurse, told me "you didn't gain the weight overnight so
>>>> don't try to take it off overnight."
>>>>
>>>> Richard H.
>>>>
>>>> On Monday, December 29, 2014 9:00:21 PM UTC-6, Beth wrote:
>>>>
>>>>> Richard,
>>>>>
>>>>> Happy New Year! Thinking of you and hoping that your uptake goes as
>>>>> easily as possible. Hope the swelling resolves with time, etc...take good
>>>>> care. we are with you! Beth
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: Richard H <[email protected]>
>>>>> To: cmlhope <[email protected]>
>>>>> Cc: icandoallttc <[email protected]>
>>>>> Sent: Sun, Dec 28, 2014 11:48 pm
>>>>> Subject: [CMLHope] Re: Beth are you back on sprycel?
>>>>>
>>>>>  Yes, I started 400mg Gleevec  Dec. 11.  I am doing well so far.  I
>>>>> have noticed some swelling in my legs and the chemo fog is noticeable.  My
>>>>> appointments have been srt for march.  Both ONCs said if you notice any
>>>>> thing unusual or any of the side effects are causing a problem call.
>>>>>
>>>>> Both agree my history that we are on top of the treatment so getting
>>>>> the CML back down should not be a problem..
>>>>> Richard H. .
>>>>>
>>>>> On Saturday, December 27, 2014 2:00:30 PM UTC-6, Icandoallttc wrote:
>>>>>>
>>>>>>
>>>>>> Hi all
>>>>>> I hope everyone is good.
>>>>>> Beth, are you back on sprycel??  Just wondering how you are.
>>>>>> Richard, have you started your Gleevec and how are you?
>>>>>> Blessings
>>>>>> Jeanie
>>>>>> Sent from my iPhone
>>>>>>
>>>>>> On Dec 25, 2014, at 7:45 PM, Richard H <[email protected]> wrote:
>>>>>>
>>>>>>   Thank you, Marti.
>>>>>>
>>>>>> On Thursday, December 25, 2014 6:32:01 PM UTC-6, [email protected]
>>>>>> wrote:
>>>>>>>
>>>>>>> Loved it, Marty!!!!  Happy New Year to you as well and may all of
>>>>>>> you folks out there live every day to the fullest, enjoying the
>>>>>>> magnificence of this world God has made!
>>>>>>>
>>>>>>> 18's,
>>>>>>> Susan F. Zimmerman
>>>>>>>
>>>>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: Marty Gartenberg <[email protected]>
>>>>>>> To: CMLHope <[email protected]>
>>>>>>> Sent: Thu, Dec 25, 2014 3:52 pm
>>>>>>> Subject: [CMLHope] The Daffodil Principal. You will need a pps
>>>>>>> viewer to see this.
>>>>>>>
>>>>>>>  This New Year is just about upon us. Live like you have never
>>>>>>> lived before. Make sure to live each day and enjoy your life. That old
>>>>>>> saying goes don't put off what you can do today.
>>>>>>>
>>>>>>> I wish everyone that is reading this a very healthy and happy New
>>>>>>> Year.
>>>>>>>
>>>>>>> 18's,
>>>>>>>
>>>>>>> Marty
>>>>>>>  --
>>>>>>> --
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