Yes you are right. Thanks Greenie. Test and wait. I forgot to get a copy if my blood work. I'll post counts when I get them. I believe he said WBC were 700,000. Time will tell. Seems strange to be back on Hydrea. Blessings Jeanie
Sent from my iPhone > On Jan 8, 2015, at 1:58 PM, Myvety2k via CMLHope <[email protected]> > wrote: > > Jeanie, Don't think bad news, think Good news. Their's always up's and > down's with CML. Been their done that. Their's nothing worst then worry. > > greenie > > In a message dated 1/8/2015 1:22:00 P.M. Eastern Standard Time, > [email protected] writes: > Just got back from Moffitt. All counts were up and uremic acid was high. > Dr took me off sprycel and put me on Hydrea, and other drugs. Took another > blood test for mutant. Will know next week if mutant is problem. > Pray for me and all in need. > Jeanie🐟 > > Sent from my iPhone > >> On Jan 8, 2015, at 11:07 AM, Marty Gartenberg <[email protected]> wrote: >> >> Hi again Sherri, >> >> Hopefully you will be able to be treated for this condition. It seems that >> as most of us get older we start suffering from some very unusual things, >> but that is the price we must pay to remain alive. We just have to do >> whatever we can to keep on going because we have no other choice. >> >> My kidneys failed four years ago and I must be on dialysis because it is >> keeping me alive until I can hopefully receive a kidney transplant. >> >> This happened because when I received a bone marrow transplant more then 25 >> years all of the radiation and chemotherapy started to destroy my kidneys, >> but i'm still alive today because of it. We all have our own battles in life >> and that is just the way it is. >> >> I wish you much health and happiness in this New Year. >> >> 18's, >> >> Marty >> >>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>> <[email protected]> wrote: >>> Hi Marty, >>> >>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>> article. I could only wish it was as simple as being as side effect of my >>> TKI. In my case, nothing is ever simple LOL. What I have is called >>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>> malfunctioned. Here is a link for you to read if you would like to. >>> >>> http://en.wikipedia.org/wiki/Dysautonomia >>> >>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>> involuntary body functions, including heart rate, blood pressure, >>> perspiration and digestion. >>> It isn't a specific disease. Autonomic Neuropathy refers to damage to the >>> autonomic nerves. This damage disrupts signals between the brain and >>> portions of the autonomic nervous system, such as the heart, blood vessels >>> and sweat glands. This can cause decreased or abnormal performance of one >>> or more involuntary body functions. >>> >>> Autonomic Neuropathy can be a complication of a number of diseases and >>> conditions. And some medications can cause autonomic neuropathy as a side >>> effect. Signs, symptoms and treatment of autonomic neuropathy vary >>> depending on the cause, and on which nerves are affected. >>> >>> L'Chaim, >>> >>> Sherri >>> >>> >>> >>> >>> >>> >>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> wrote: >>>> Hi Sherri, >>>> >>>> I did a little research on your no sweating problem, and it is probably a >>>> side effect of your TKI treatment. >>>> >>>> I also ran across an article which you can read here. It does mention >>>> something about the lack of sweating. It probably has nothing to do with >>>> your problem but maybe you should read it anyway. >>>> >>>> http://en.wikipedia.org/wiki/Fabry_disease >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>> <[email protected]> wrote: >>>>> Hello, >>>>> >>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. I've >>>>> also experienced night sweats for many years. At first I was told that >>>>> it was due to menopause because of my age at the time. Go figure. When >>>>> that was no longer an option, the only thing left was the Gleevec. Since >>>>> being dx'd with the CML in 2003, I've been dx'd with other >>>>> chronic illnesses that are just as serious. >>>>> >>>>> With these new illnesses came a new problem. I no longer sweat at all. So >>>>> now I have the complete opposite problem. No matter how hot it is, I >>>>> never sweat. I a way, it's nice because I'm always cold and I long for >>>>> very hot days so I can go out side in the heat. But my oncologist has >>>>> warned me to not do it for very long as I have no way to >>>>> control my body temperature. Unfortunately, it works the same way with >>>>> the cold. My body temperature is a constant 95 degrees. >>>>> >>>>> So, in answer to your question, yes, the Gleevec does cause >>>>> night sweats. It is one of its side effects. Unfortunately, I was not >>>>> able to find a remedy for my night sweats other than going to the extreme >>>>> which I do not recommend. <332.png> >>>>> >>>>> I hope everyone has a good New Year and is healthy. Keep my posted as to >>>>> what you find out. Even thought I no long have this issue, I would still >>>>> like to be kept in the loop. >>>>> >>>>> L'chaim >>>>> >>>>> Sherri >>>>> >>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>> <[email protected]> wrote: >>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I will >>>>>> see what may be available naturally, as I don't want hormones either. >>>>>> Sorry you are experiencing this same problem which I hope to >>>>>> solve. >>>>>> >>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>> Year. >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPad >>>>>> >>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via >>>>>>> CMLHope" <[email protected]> wrote: >>>>>>> >>>>>>> Dear Marcie, >>>>>>> >>>>>>> I have had night sweats for years, intensifying after my dx in 2005. I >>>>>>> have day sweats, too. When I stand up for more than five minutes to do >>>>>>> anything at all I start profusely sweating from weakness. I think part >>>>>>> of this is from the bosulif, but most is from the stroke weakness and >>>>>>> need for hormones. I will not take artificial hormones and have not >>>>>>> gotten the good kind that are specially made for each person. I >>>>>>> totally sympathize with you Marcie. You might want to go to a >>>>>>> naturalist doctor about getting a test for hormones and then they will >>>>>>> make a compound for you of cream that usually works. Regular md's only >>>>>>> know to prescribe the synthetic or horse hormones which do cause >>>>>>> cancer. That's my take on it, hope you find some relief!!! >>>>>>> >>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>>> Susan F. Zimmerman >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>> Subject: [CMLHope] Night Sweats >>>>>>> >>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>>>> night >>>>>>> sweats as a side effect of your TKI. I do, and have, over the years of >>>>>>> my >>>>>>> treatment. I don't know that it is happening more frequently but the >>>>>>> sweats seem >>>>>>> to be more intense. Is there anything that you know of that will help? >>>>>>> >>>>>>> Many thanks for always being there to offer encouragement and >>>>>>> assistance. >>>>>>> >>>>>>> Marcie >>>>>>> >>>>>>> Sent from my iPad >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups >>>>>>> "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to >>>>>>> [email protected] >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups >>>>>>> "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email >>>>>>> to [email protected]. >>>>>>> For more options, 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