Hi Greenie and thanks. I knew you were one of the successful gleevec patients. So happy for you. Blessings Jeanie
Sent from my iPhone > On Jan 9, 2015, at 8:11 AM, Myvety2k via CMLHope <[email protected]> > wrote: > > Jeanie, as of Jan. 10th I will have been on Gleevec for 15 years. Starting to > retain fluid around my ankles a little but that could be and age thing. 75 > years old. > > greenie > > In a message dated 1/9/2015 7:53:41 A.M. Eastern Standard Time, > [email protected] writes: > Hi Richard and thanks for the update. My onc doesn't like for me to be > informed either; he just ignores what I say and goes on to tell me what he > thinks. > My uric acid was high along with my WBC and Platelets. He seemed to be more > concerned with the high uric acid--even called me on my cell personally > twice; never had that happen before. > He took me off Sprycel adn put me on Hydrea and allopurinol; it's funny the > same thing they did 11 years ago when I was first dx. > He took another blood sample to see if I have a mutation against the Sprycel. > It seems strange that I had a mutation with Gleevec after 5 years. Is five > years a cut off point? Has anyone else have this happen? Anyone else been on > Hydrea after tki? > Going next week to Moffitt to see if I have the mutation. Will let everyone > know. > The leukemia has reared it's ugly head once again!! > Pray for me and everyone in need. > Blessings > Jeanie > (18) > > > In a message dated 1/8/2015 11:59:08 P.M. Eastern Standard Time, > [email protected] writes: > WOW! Just read todays posts. I am praying for the group. I will add my > problem to the list. Dec. 30 I contacted ONC about gaining 9.5 pounds water > weight in 20 days after restarting Gleevec. His nurse called that he was out > of the country on vacation with his family. She checked with the DR. > covering for him and he asked me to stop Gleevec as he thought I was gaining > weight too fast also. My ONC did return to the office on Monday but finally > had a conference with his Associate and he agreed with that decision. They > both thought that I should be on a different treatment. My ONC was to draft > an e-mail to the VA ONC (the one controlling my prescriptions) about my > reaction to Gleevec and to recommend the treatment he thinks I should be on. > So I am still in a wait and see stage. My ONC tells me I am too informed > about my condition and that challenges most blood cancer specialists that > rarely see CML. > So let the fun and games continue. I am still feeling great, but the > "Gleevec Brain" was also starting to show itself, but nine days off has > cleared it. I'm as sharp as a busted tack, but that is "normal" for me. > > As always, "life" and may your tomorrow be beautiful and better than today. > > Richard H. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
