Thanks Joyce Yes I'm going to have another BMT fri. They will find out what's going on. Staying positive and trusting in The Lord. Blessings Jeanie 18's 🐟
Sent from my iPhone > On Jan 10, 2015, at 1:47 AM, Joyce Mesnarich <[email protected]> wrote: > > Jeanie, > So sorry to hear about your set-back. Glad you are going to Moffitt to try > to sort things out. Remember that we have several other drugs to > use.....just have to get over this rough patch. you are in my prayers and > thoughts. > Joyce in IL > > > > Begin forwarded message: > >> From: ICANDOALLTTC via CMLHope <[email protected]> >> Date: January 9, 2015 6:53:38 AM CST >> To: [email protected] >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> Reply-To: [email protected] >> >> Hi Richard and thanks for the update. My onc doesn't like for me to be >> informed either; he just ignores what I say and goes on to tell me what he >> thinks. >> My uric acid was high along with my WBC and Platelets. He seemed to be more >> concerned with the high uric acid--even called me on my cell personally >> twice; never had that happen before. >> He took me off Sprycel adn put me on Hydrea and allopurinol; it's funny the >> same thing they did 11 years ago when I was first dx. >> He took another blood sample to see if I have a mutation against the >> Sprycel. It seems strange that I had a mutation with Gleevec after 5 years. >> Is five years a cut off point? Has anyone else have this happen? Anyone >> else been on Hydrea after tki? >> Going next week to Moffitt to see if I have the mutation. Will let everyone >> know. >> The leukemia has reared it's ugly head once again!! >> Pray for me and everyone in need. >> Blessings >> Jeanie >> (18) >> >> >> In a message dated 1/8/2015 11:59:08 P.M. Eastern Standard Time, >> [email protected] writes: >> WOW! Just read todays posts. I am praying for the group. I will add my >> problem to the list. Dec. 30 I contacted ONC about gaining 9.5 pounds water >> weight in 20 days after restarting Gleevec. His nurse called that he was >> out of the country on vacation with his family. She checked with the DR. >> covering for him and he asked me to stop Gleevec as he thought I was gaining >> weight too fast also. My ONC did return to the office on Monday but >> finally had a conference with his Associate and he agreed with that >> decision. They both thought that I should be on a different treatment. My >> ONC was to draft an e-mail to the VA ONC (the one controlling my >> prescriptions) about my reaction to Gleevec and to recommend the treatment >> he thinks I should be on. So I am still in a wait and see stage. My ONC >> tells me I am too informed about my condition and that challenges most blood >> cancer specialists that rarely see CML. >> So let the fun and games continue. I am still feeling great, but the >> "Gleevec Brain" was also starting to show itself, but nine days off has >> cleared it. I'm as sharp as a busted tack, but that is "normal" for me. >> >> As always, "life" and may your tomorrow be beautiful and better than today. >> >> Richard H. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
