Hi Joyce and all, I took my second dose this morning--so far so good. I was a little worried because my dr only ordered enough for 2 pills a day and now he is telling me to take 3 pills a day. I don't know how the reordering works as I have never had this drug before. It seems I am in the accelerated phase of cml according to all the blood test but my bone marrow proved to be in pretty good shape. I feel better today than in a long time so let's see how it goes. My dr also say to keep taking the allupurinal daily. Didn't know this was a long termed drug. Has anyone else had their platelets in the millions? I wonder if something else could be causing it. Blessings And Prayers 18's Love
In a message dated 1/26/2015 9:32:46 P.M. Eastern Standard Time, [email protected] writes: Jeanie, Thanks for keeping us in the loop. Please continue to let us know how you are tolerating ponatinib. I am praying for you that this drug will work for you and not have unmanageable side effects. God bless and keep you, Joyce in IL On Jan 26, 2015, at 1:00 PM, 'Icandoallttc' via CMLHope wrote: > Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. > Do this for 3 days and see him on thurs. > There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? > 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. > Prayers > > Blessings Jeanie 18's 🐠🐠 > >> On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" <[email protected]> wrote: >> >> Hi all, >> >> >> Blessings Jeanie 18's 🐠🐠 >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. Blessings And Prayers 18's Love -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
