Hi Susan You could get a blood order and get it done locally. I get my primary doctor to take one in between visits. I would never go 3 months again because my counts went up and I didn't know it. I'm in bad shape now. Had to change meds. Not fun!
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 3, 2015, at 7:20 AM, "'Susan Zimmerman' via CMLHope" > <cmlhope@googlegroups.com> wrote: > > Greenie, > > We had 15 inches on Sunday. Roads are all clear and back to normal today. I > enjoy being stuck in by the wood stove keeping warm and hunkering down. > NEVER thought I'd say that! Must be getting old. I was always a gadabout, > but as life and health changes, we change! Mine is for the good, thank God. > > I was very surprised when I got my "test results" back from my latest bcr/abl > after spending the night in Chicago and spending lots more than usual to > enjoy a little fun. ($$$) The results were "insufficient test blood"!!!! > Never happened before, (well maybe once in Fla.) > > So back to the drawing board. We moved it out to a 3 month visit, so unless > I get it done locally it will be six months. Last results were .04 INT LOVE > to all of you and praying for you all, my family. > > Love and 18's, > Susan > > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Feb 3, 2015 6:57 am > Subject: Re: [CMLHope] Ponatinib > > Hi Beth, I received a call from my son Derek about the snow he lives in North > Chicago. I hope I never have to move back north, can't handle the cold and > snow. > > greenie > > In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. Hope > the ponatinib works soon Jeanie and sorry you are struggling Skip. Do let us > know if you what you decide regarding ponatinib. I think about it also. ... > > Greenie, hope you and your wife are feeling much better. > > Snow here in Chicago. 21 inches, drifts up to my waist when I opened my front > door this morning. Now work today..have a cold so it was a good day to bunker > down here. > > Blessings and love to all. Beth > > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Feb 2, 2015 3:45 pm > Subject: Re: [CMLHope] Ponatinib > > Jeanie, it's a good thing we don't get snow or ice here in Florida because > the way these people drive here the insurances companies would go out of > business in one day. They can't drive here when the roads are dry. > > greenie > > In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Thanks Skip-I've never had blood counts that low--always battling high ones. > Wow! That storm sounds neat! > We never get sleet and snow in Florida. I saw a sleet and snow storm in my > visit to Switzerland. My kids loved it and were playing in it. I wasn't > that brave--I went inside hehe. > I hope you get your platelets soon. > > Prayers & Blessings Jeanie 18's > > On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" > <cmlhope@googlegroups.com> wrote: > >> I am so sorry you counts vary so much mine have been doing that now for a >> few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut 0.3... >> ANC 0.279 normally I would get somePLTS tomorrow but we have another big >> storm going to hit tonight and will have freezing rain in morning and all >> the snow will turn to ice.. so we will hold off until Wed. I am sorry for >> not posting much but I find using the computer very makes me very tired >> lately. still thinking about Ponatinib, this is my fourth year without >> anything except blood and platelet infusions >> Skip Duffie >> >> >> My brother lives in Naples, I live in South Fort Myers min. from the beach. >> The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and Sat 68. >> Below normal should be in the low 80's BUT better then SNOW> >> >> Greenie >> >> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, >> jl...@rogers.com writes: >> Hi I am OK I had my counts done last Wednesday and my platelets were 35 and >> white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am still >> off the drug and have another check this coming Wednesday. I will go back on >> the drug then and probably at 2 or three a week. My wife and I will be >> coming to Naples Florida to visit friends for a week or so. I hope it will >> be warm. Have your counts come down ? >> >> Sent from my iPad >> >> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope >> > <cmlhope@googlegroups.com> wrote: >> > >> > Hi John >> > I go to Moffitt cancer center. How are you? >> > >> > Prayers & Blessings Jeanie 18's >> > >> >> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com> wrote: >> >> >> >> Hi Jeanie: Where are getting treated? John >> >> >> >> Sent from my iPad >> >> >> >> -- >> >> -- >> >> [CMLHope] >> >> A support group of http://cmlhope.com >> >> ------------------------------------------------- >> >> >> >> You received this message because you are subscribed to the Google Groups >> >> "CMLHope" group. >> >> To post to this group, send email to CMLHope@googlegroups.com >> >> To unsubscribe from this group, send email to >> >> cmlhope-unsubscr...@googlegroups.com >> >> For more options, visit this group at >> >> http://groups.google.com/group/CMLHope >> >> --- >> >> You received this message because you are subscribed to the Google Groups >> >> "CMLHope" group. >> >> To unsubscribe from this group and stop receiving emails from it, send an >> >> email to cmlhope+unsubscr...@googlegroups.com. >> >> For more options, visit https://groups.google.com/d/optout. >> > >> > -- >> > -- >> > [CMLHope] >> > A support group of http://cmlhope.com >> > ------------------------------------------------- >> > >> > You 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