Susan, So good to hear from you and I know how good it is to see the snow melt away. Take good care and thanks for always lifting us up in prayer.
Marcie Sent from my iPhone > On Mar 10, 2015, at 10:10 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > Dear Greenie, > > Thinking of you and hoping for a good report. This is just another small > bump in the road. I am praying extra for you. God bless and keep us posted. > > > I am thinking about all of you and pray for good news. The great news is we > get up every day and I really think we might see Spring soon! All our snow > is melting FAST here in northern Indiana....50 for most of the week. My dog > is elated she can roam the dead grass instead of the snow again! > > Beth will await your reports' findings as well. I don't go to Chicago until > mid-April for more tests. So it will be six months in between tests, which > is not recommended. But they screwed up the last test, so I'm just patiently > waiting.... > > 18's and good sleep to all of you, > > Susan > > -----Original Message----- > From: bkbarney via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Mar 10, 2015 5:29 pm > Subject: Re: [CMLHope] CML visit > > Dear Greenie, I hope your test results come out O.K., and they can find a > simple explanation for your weight loss. So sorry you are going through the > stress of all this...thinking of you.... > > And Richard, as Sherri said, great news about your hemoglobin and the > collaboration of your docs on your behalf. Colonoscopy sounds > reasonable...just to rule out and give you peace of mind. Are you more tired > than usual??? > > Stay positive and stay strong. Keep us posted... > And Sherri, so sorry you had to have a transfusion, but I hope it made you > feel better and stabilized your counts.. > > Still praying for Marty. > Jeannie, I know it's been a rough two months on ponatinib and you have felt > miserable...I hope it gets better with time, and maybe, you can take less of > a dose in months, years to come, if your doc recommends it to help you with > the toxicity. thinking of you... > > Not a lot new to report here....still working on understanding and treating > muscle/ weakness/ elevated CPK etc...issues..will do more blood work to rule > out any other possible cancers lurking, but I don't think that is it..at > least I, like Greenie, sure hope not. > > 18's to all > > Beth > > -----Original Message----- > From: Myvety2k via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Mar 10, 2015 5:31 am > Subject: Re: [CMLHope] CML visit > > Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. > Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to > get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff), > vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a > colonoscopy to screen for colon cancer Friday. I really don't need 2 > different kinds of cancer so I'm worried. Will let you all know what happens. > > greenie > > In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, > [email protected] writes: > Richard, That is great news about the your haemoglobin. I also think it's > great that your drs are talking to one another. That is so important. > Last week, I had to get a transfusion as my counts were so low. I went to my > onc and he did the usual blood draw and my WBC was 2.4. That was enough to > send me over to the hospital for type and cross match and a transfusion. > > I too am eager to hear about Marty and pray for him everyday. > > Sherri > >> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> Richard, excellent news and I'm happy to hear that your hemoglobin has >> stabilized. Glad that your doctors are in sync, too, because that will >> certainly make your life easier. Yay! >> >> Marcie >> >> Sent from my iPhone >> >> On Mar 10, 2015, at 12:15 AM, Richard H < [email protected]> wrote: >> >> I visited my VA ONC today and both ONCs are bck on the same page. The >> better news is it appears that my hemoglobin has stabilized at 10.5. we are >> going to move forward with the testing program until the end of May. >> Another piece of news that makes me very happy is that both ONC's works at >> Kansas University Cancer Center. The VA contracts it's Doctors and Fellows >> (Doctors in training). They can access all my records at both offices with >> the new Cerner Medical Systems that are being installed world wide. >> >> I am anxiously waiting for more news from Marty, and him keeping him my >> prayers. >> >> Richard H. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
