Hi Joyce and Wayne,
Enjoyed your encouragement for the people below. Just wanted you to know I'm also on 100 mg of bosulif since last April 30th, and doing quite well! Last test was done 3 months ago, but it was a fakeout as they got no results cuz it was botched. So I opted to wait 3 more months to go back, as we had spent a lot of money to go into Chicago and do some fun things. I go back I think on April 23rd. My last check I was in remission but not down to zero quite yet. It's going to be exciting to hear the good news when you get it that his counts are going down. Do you know what they are now? Where in southern Illinois do you live? We are in Granger, IN, top middle of Indiana, about 2 hrs 20 min. from downtown Chicago if no traffic. I had to choose between Dr. Talpaz and Dr. Altman from recommendations by my old doc in Fla. at Moffitt.(We moved back home to Indiana in 2010 from Fla.) I went 7 yrs and 2 mos without any medication after being on gleevec for 2 years because I had several brain bleeds and didn't want to die from that....lol So I defied the docs and said no med until I go out of remission. I never came out of cellular remission, but counts were 23 INT'l scale when I began bosulif. I told them I wanted the lowest dose, and it's working! Why is Wayne on the lowest dose again? I know you've told me, but I forget! (chemo brain?) Many blessings and Happy Easter, Susan F. Zimmerman -----Original Message----- From: Joyce Mesnarich <[email protected]> To: CMLHope <[email protected]> Sent: Thu, Mar 19, 2015 11:53 pm Subject: [CMLHope] Checking in/ to all my CML friends Haven't posted for a week or so, but I have been monitoring the site. Sherri, you said it is getting warmer in Northern Illinois and the snow is beginning to melt. I guess you are planning on sending it down to us in Southern Illinois. LOL We will all feel better when it gets warmer and the sun shines more. Jeanne, so sorry to hear that you are still having ear pain. Stay on it. You have been through a lot lately and I suppose you have put this ear thing at the bottom of the list. So go for it now! Glad to hear you are tolerating ponatinib. Greenie, glad to know your colonoscopy had a good outcome. My husband has been through 2 of them in less than 2 years. They insist he has blood in his stool, but both times they did a colonoscopy, endoscopy (down the throat and into the stomach), and he even swallowed the camera, just in case something was missed. All tests came back ok. That's good, but where is the problem???? His blood counts go down, indicating he is losing blood and they go through the same song and dance with no answers. Don't know what to do next. Get the breast thing checked out quickly. This, too, you will overcome, if it is indeed something. May be nothing. Now you know what all us women go through. Just kidding....a little levity is needed sometime. My thoughts and prayers are with you. Marty, I know you are out there somewhere and probably your wife is checking this site from time to time. Just know that we are all praying for you. I know that the operation you just had is probably the hardest thing you may have gone through.....I know the bone marrow transplant was no walk in the park. But you have added a few years since then and it stands to reason that we don't have the same "bounce back" that we did when we were younger. Just be patient and do whatever they tell you.....within reason. God bless and keep you! My husband, Wayne, has been on bosulif for a month now, after having to stop Sprycel in August because of pleural effusion. He is doing very well, so far. He is on a small dose (100 mg). He will go to see Dr Talpaz in Michigan the middle of April for testing. Then a few weeks later we will know if bosulif is working its magic. Joyce in IL -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
