So don't think I can take it. Is anyone dealing with high potassium? I have been dealing with it for about six years. Alk phosphatase was a little high 107. Hope everyone is good tonight.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Apr 29, 2015, at 4:47 PM, "'Icandoallttc' via CMLHope" > <[email protected]> wrote: > > Hi all. My visit to Moffitt was good today. Blood counts almost normal. > WBC went to 11 but that's only one point over. Wish they had come down. > Platelets in the middle at 235. My potassium went up to 5.6. My PCD gets > upset when it goes that high but just need to watch foods and drink more > water. My onc changed my blood pressure med to lozartan but that is > potassium > > Prayers & Blessings Jeanie 🐟🐟18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > >> On Apr 28, 2015, at 10:03 PM, Myvety2k via CMLHope >> <[email protected]> wrote: >> >> Jeanie, keep us all posted O. K. we are all thinking of you. >> >> greenie >> >> In a message dated 4/28/2015 6:18:24 P.M. Eastern Daylight Time, >> [email protected] writes: >> Thank you Beth. I've been with this group for years now. We love each >> other through thick or thin. We have lost some wonderful warriors and we >> love them still. Thanks for loving us and we return your love in full. >> Keep praying and fighting. How are you? >> >> Prayers & Blessings Jeanie 🐟🐟18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> >>> On Apr 28, 2015, at 5:49 PM, bkbarney via CMLHope >>> <[email protected]> wrote: >>> >>> You keep us posted Jeannie, and stay close...we love you, I love you..even >>> though I have never met you...A colleague of mine was talking to me today, >>> I I shared a tiny pin hole of what my life is really like with her....and >>> she said ..she could not imagine going through all of this without the >>> support of people who are living it as well.....thanks for being in my >>> circle. Beth >>> >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Tue, Apr 28, 2015 4:46 pm >>> Subject: Re: [CMLHope] Jeanie's update >>> >>> Hi Beth and thanks. I have tried everything. This new chemo affects your >>> whole body. Very dry skin thinning hair and etc. Reminds me of Gleevec. >>> Going to Moffitt tomorrow. Let the group know how my blood is doing. >>> >>> Prayers & Blessings Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s >>> Dx 1/2004 >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> >>> On Apr 28, 2015, at 5:14 PM, bkbarney via CMLHope < >>> [email protected]> wrote: >>> >>> Dear Jeannie, >>> >>> I am so sorry you continue to struggle so with such significant side >>> effects. Wish I had an easy fix...but of course, I don't...since the meds >>> are what pushes the blood pressure up, I don't know if anything natural >>> would help at all, but there are some foods that are natural diuretics, >>> which in turn lower blood pressure some.....deep breathing and >>> meditation/visualization...visualizing your heart rate slowing, and your BP >>> slowly coming down to a healthy normal..some mind body connecting...I dont' >>> know if this can help at all..but thought I would mention it...You can look >>> on google for foods - fruits and vegetables that are natural diuretics... >>> >>> I wish you peace... >>> >>> Love to all..and so nice to see Marty back here connecting... >>> >>> .Beth >>> >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope < [email protected]> >>> To: cmlhope < [email protected]> >>> Sent: Sat, Apr 25, 2015 5:24 pm >>> Subject: [CMLHope] Jeanie's update >>> >>> Hi every one, >>> I hope this Friday finds you guys all keeping the faith and doing well. >>> >>> I have been taking ponatinib now for 4 months. You are supposed to reach a >>> good response in 6 months with a 12 month steady response. My blood is >>> almost back to normal but I have had a lot of side effects. >>> >>> Rash >>> Dry skin. Bad >>> Rash >>> High blood pressure >>> Constipation >>> Headaches >>> >>> There is a chance of blood clots and heart problems and more. >>> >>> The blood pressure meds don't work well with me and I have tried a lot. Any >>> suggestions? >>> >>> Hang I'm there Marty. Maybe next year we will both feel like traveling the >>> world. >>> >>> Prayers & Blessings Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s >>> Dx 1/2004 >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> >>> On Mar 10, 2015, at 6:31 AM, Myvety2k via CMLHope < >>> [email protected]> wrote: >>> >>> Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. >>> Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over >>> to get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no >>> diff), vitamin B12 level and TSH, Ultrasensitive. Also he want's me to >>> have a colonoscopy to screen for colon cancer Friday. I really don't need >>> 2 different kinds of cancer so I'm worried. Will let you all know what >>> happens. >>> greenie >>> In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> Richard, That is great news about the your haemoglobin. I also think it's >>> great that your drs are talking to one another. That is so important. >>> Last week, I had to get a transfusion as my counts were so low. I went to >>> my onc and he did the usual blood draw and my WBC was 2.4. That was enough >>> to send me over to the hospital for type and cross match and a transfusion. >>> >>> I too am eager to hear about Marty and pray for him everyday. >>> >>> Sherri >>> >>>> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >>>> <[email protected]> wrote: >>>> Richard, excellent news and I'm happy to hear that your hemoglobin has >>>> stabilized. Glad that your doctors are in sync, too, because that will >>>> certainly make your life easier. Yay! >>>> >>>> Marcie >>>> >>>> Sent from my iPhone >>>> >>>> On Mar 10, 2015, at 12:15 AM, Richard H < [email protected]> wrote: >>>> >>>> I visited my VA ONC today and both ONCs are bck on the same page. The >>>> better news is it appears that my hemoglobin has stabilized at 10.5. we >>>> are going to move forward with the testing program until the end of May. >>>> Another piece of news that makes me very happy is that both ONC's works at >>>> Kansas University Cancer Center. The VA contracts it's Doctors and Fellows >>>> (Doctors in training). They can access all my records at both offices >>>> with the new Cerner Medical Systems that are being installed world wide. >>>> >>>> I am anxiously waiting for more news from Marty, and him keeping him my >>>> prayers. >>>> >>>> Richard H. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- 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