Hello Vic,

I finally got tested again (bcr/abl) which showed my number as .01!!!  Almost 
undetectable with 100  mg a day of bosulif.  I am doing great with that but 
just recovered from a bad bronchitis.  Also discovered yesterday the reason I 
felt like staying in bed 24/7 was because my blood pressure was too low!  So 
skipping last night's dose did miracles for me today!!!  Taught my Bible study 
this morning and feel great!  Two more times and we'll be done with Search for 
Significance.  Hopefully the ladies I'm teaching are learning how valuable they 
are!  It seems like a slow process with this group.  I just plant, and do a 
little watering, and let Him do the rest.  We can choose to be victorious or 
choose to stay down in the dumps.  I choose life!


Have a great week and until next time.....be blessed!
18's,



Susan F. Zimmerman




-----Original Message-----
From: Victoria Reiter <[email protected]>
To: cmlhope <[email protected]>
Sent: Tue, May 5, 2015 11:43 am
Subject: Re: [CMLHope] My article re: CML


 
 I do thank you for your feedback and am truly glad you liked the article, and 
responded.  
I'm much better, getting on with my life, writing, working, traveling..all the 
things I did before.  The only caveats are the on-going side-effects that I've 
learned to live with (more or less) and having to pay attention to what I do, 
how I do it and what may arise.  And being punctilious about taking the 
Gleevec, and then the visits to the oncologist which are now down to twice a 
year.  As I grow older, other things are beginning to be bothersome but I 
suppose that's so completely normal, I shouldn't be surprised.  And how are YOU 
doing?    
 
 
  
  
On Fri, May 1, 2015 at 4:49 PM, rszim0702 via CMLHope    
<[email protected]> wrote:   
   
    I enjoyed the story, Vivi!  So much of the gleevec story paralleled mine 
with the side effects.  Very interesting to read about your dancing classes, 
etc.  
 
      
May all your dreams come true as you continue your journey to live a life well. 
      
      
Blessings,      
       
Susan F. Zimmerman      
       
       
       
      
 
 
      
      -----Original Message-----
 From: 'Icandoallttc' via CMLHope <[email protected]>
 To: cmlhope <[email protected]>
 Sent: Fri, May 1, 2015 3:02 pm
 Subject: Re: [CMLHope] My article re: CML
 
       
        
         
          Great story vivi and good job!!  A cml friend of mine, Norman --are 
you there Norman?  Went through those first gleevec trials. I myself suffered 
through the Gleevec for 5 years before I developed a mutant.  We know exactly 
what you are talking about. How are you now? 
 
 Prayers & Blessings Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s          
          
           
 Dx 1/2004            
            
 Started Gleevec 2/2004            
            
 Started Tasigna  9/2009            
            
 Started Sprycel 11/2009            
            
 Started Ponatinib January 2015            
           
         
        
        
         
           
            
 On May 1, 2015, at 9:17 AM, Vivi <            [email protected]> wrote:       
     
            
           
           
            
             
              Eclectica.org, an on-line literary magazine, is featuring my 
article about how I learned I have CML, the early treatment that was a failure, 
starting to take Gleevec, its results and how I managed to regain strength and 
stamina once the CML was under control.              
 If any CMLer reads the article, I'd love to have some feedback.               
               
                
               
              
             
             
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