Have them check for mutations. Gleevec quit working for me after 5 years. I had a mutation. Tasigna never worked for me and was put on sprycel. Sprycel worked for about 5 years and had another mutation. I am now on ponatinib. 6 months into treatment. Good luck.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 6, 2015, at 11:18 AM, "'Marcie Goodman' via CMLHope" > <[email protected]> wrote: > > Sorry for typos on 1st email. "On Gleevec" and 600 mg! Chemo Brain. > > Sent from my iPhone > >> On Jun 6, 2015, at 11:14 AM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> >> Thanks, Beth and Jeanie. After 6 years o Gleevec, I've gone out of PCRU and >> the numbers are slowly climbing. They aren't high and I'm still considered >> to be in MMR. If this test shows that they are still on the rise, it is >> likely I'll be switched to >> Tasigna or bumped up to 60 mg Gleevec. I've already done that higher dose >> and it wasn't something I tolerated very well. >> >> Isn't it amazing that we have alternatives? Prior to Gleevec and absent a >> transplant, we wouldn't be here. So I'm not stressed, just thankful for >> options. >> >> How is everyone doing now that summer is approaching? I wish we could meet >> somewhere. >> >> Sent from my iPhone >> >>> On Jun 6, 2015, at 12:20 AM, bkbarney via CMLHope >>> <[email protected]> wrote: >>> >>> Good luck Marcie...thinking of you and sending you good wishes...hope the >>> bone marrow biopsy goes well..18's Beth >>> >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Fri, Jun 5, 2015 9:12 am >>> Subject: Re: [CMLHope] >>> >>> Good luck. Been there done that. Prayers to you today and every day. Are >>> you >>> having a bone marrow aspiration ? >>> >>> Prayers & Blessings Jeanie 18,s >>> Dx >>> 1/2004 >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel >>> 11/2009 >>> Started Ponatinib January 2015 >>> >>> > On Jun 5, 2015, at 11:01 AM, >>> "'Marcie Goodman' via CMLHope" <[email protected]> wrote: >>> > >>> > I'm >>> waiting at the hospital for blood work for CBC and bone marrow work. >>> > >>> > >>> Sent from my iPhone >>> > >>> > -- >>> > -- >>> > [CMLHope] >>> > A support group of >>> http://cmlhope.com >>> > ------------------------------------------------- >>> > >>> > >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> > To post to this group, send email to >>> [email protected] >>> > To unsubscribe from this group, send email to >>> [email protected] >>> > For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> > --- >>> > You received this message >>> because you are subscribed to the Google Groups "CMLHope" group. >>> > To >>> unsubscribe from this group and stop receiving emails from it, send an >>> email to >>> [email protected]. >>> > For more options, visit >>> https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of >>> http://cmlhope.com >>> ------------------------------------------------- >>> >>> You >>> received this message because you are subscribed to the Google Groups >>> "CMLHope" >>> group. >>> To post to this group, send email to [email protected] >>> To >>> unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because >>> you are subscribed to the Google Groups "CMLHope" group. >>> To unsubscribe from >>> this group and stop receiving emails from it, send an email to >>> [email protected]. >>> For more options, visit >>> https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
