Same reason I went on ponatinib. It's working so far 6 months into treatment. My platelets and WBC were in the millions when I started it. Good luck John.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 12, 2015, at 10:30 AM, John Barrons <[email protected]> wrote: > > Hi I do not know whether gleevec or the other drugs got rid of 355g. I don't > whether I still have it or not. The reason I went on ponatinib was that the > other drugs were not working any more. John B > > Sent from my iPad > >> On Jun 11, 2015, at 6:19 AM, [email protected] wrote: >> >> >> [email protected] Google Groups >> Topic digest >> View all topics >> off Sprycel - 6 Updates >> off Sprycel >> Choi <[email protected]>: Jun 10 04:03AM -0700 >> >> Thanks John, so Gleevec, Tasigna, Sprycel didn't work for E355G? That's why >> you are on Ponatinib right now? >> Choi <[email protected]>: Jun 10 04:05AM -0700 >> >> It's too far away from here South Korea. Do you know Dr, Druker's e mail >> address? I just want to talk with him via e mail. >> Choi <[email protected]>: Jun 10 04:17AM -0700 >> >> I think you developed mutant after 5 years of Gleevec. Were you on PCRU when >> developed mutation? T315I? So switched to Tasigna, Sprycel and finally >> Ponatinib? >> John Barrons <[email protected]>: Jun 10 07:29AM -0400 >> >> Hi Choi: I don't have mutation 315I. I think I still have 355G but I don't >> know that. I went on ponatinib because the other drugs were not working >> anymore. I am receiving ponatinib on compassionate grounds and I have had >> cml for over 15 years. I have never been without Philadelphia chromosomes. >> >> Sent from my iPad >> >> [email protected]: Jun 10 12:02PM -0400 >> >> Choi, >> >> >> Dr. Druker's email is: [email protected] >> >> >> hope this helps you.. Take good care, 18's Beth >> >> >> >> -----Original Message----- >> From: Choi <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Wed, Jun 10, 2015 6:05 am >> Subject: Re: [CMLHope] off Sprycel >> >> >> It's too far away from here South Korea. Do you know Dr, Druker's e mail >> address? I just want to talk with him via e mail. >> >> -- >> -- >> [CMLHope] >> A >> support group of >> http://cmlhope.com >> ------------------------------------------------- >> >> You >> received this message because you are subscribed to the Google Groups >> "CMLHope" >> group. >> To post to this group, send email to [email protected] >> To >> unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because >> you are subscribed to the Google Groups "CMLHope" group. >> To unsubscribe from >> this group and stop receiving emails from it, send an email to >> [email protected]. >> For more options, visit >> https://groups.google.com/d/optout. >> Joyce Mesnarich <[email protected]>: Jun 11 01:09AM -0500 >> >> Thanks John. I am surprised that I have not seen anything about that drug >> before. Been researching in this CML department since 2008. >> Joyce in IL >> >> >> On Jun 9, 2015, at 10:32 PM, John Barrons wrote: >> >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to [email protected]. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
