Hi Sherri and all. I guess we have to realize that we are so unique and different. We have to do what we have to do to survive. When I first went on Gleevec it wasn't working. So we crush the pills and everything hoping it would work. I didn't know at the time that we were not supposed to crush the pills. I do know that some people can't swallow pills. I'm so sorry to hear about your stomach problems. I hope you get better. Thanks so much for your story.
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jul 16, 2015, at 2:43 PM, sherri swanson <[email protected]> > wrote: > > Hi everyone, > > While it is true we are not to take PPI's and we are to take our Gleevec with > a meal, I happen to be the exception to that rule. I've been on Gleevec since > 2002. I have not taken my Gleevec with any solid food in 6 years. I have a > paralyzed stomach and I can no longer digest solid food. SO I must have only > liquids. The only way I can take my Gleevec is dissolved in 3 ounces of apple > juice. NOW, I do not recommend that everyone go out and do this as it is very > hoard to tolerate and I am very sick when I take my Gleevec this way. But it > is the only way I can get it in and it was doctor recommended. And, let me > tell you, it tastes awful! > > As for the PPI's, I've been on those for as long as I've been on the Gleevec. > However, do to my kidney disease, my nephrologist has taken me off of the PPI > and my stomach is very angry with me. More so than before. > > Now, I do not recommend that you go out an take the PPI's and Gleevec at the > same time. I'm a special case and I was able to tolerate. Jeanie is correct > when she says you should follow the instructions from the packet. I'm just > relaying my experience. > > L'chaim > > Sherri > >> On Thu, Jul 16, 2015 at 1:02 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hello all. >> When I was in the hospital in 2009 after Gleevec failed I kept asking my onc >> at the time to start me on Sprycel. He wouldn't at first but finally a >> nurse convinced him to do it. He was giving me 600 mgs Gleevec plus other >> drugs. My platelets and WBC were very high and not coming down even after >> blood cleansing. >> He came in my room and gave me a prescription for Sprycel. The hospital I >> was in couldn't get the Sprycel so my son had it filled at Walgreens. I was >> reading the Sprycel information and it said no proton pump inhibitors. I >> found out that due to my side pain they were giving me a proton pump >> inhibitor twice a day. No wonder the meds weren't working! >> I refused to take the inhibitor again. >> The Sprycel put me into remission in just a few months. So be your own >> doctor at times and read the info on your drugs. >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Jul 16, 2015, at 6:39 AM, "'Icandoallttc' via CMLHope" >>> <[email protected]> wrote: >>> >>> Hi we are not supposed to have proton pumps on tkis. I'm so sorry he is >>> sick. He is supposed to take his gleevec with a large meal. I took mine >>> with my breakfast. Read your gleevec info and see the info there. Has he >>> added any new med? >>> Keep him on mild food and see a dietician if possible. Good luck. >>> My Motto: Faith and Pills >>> Jeanie 🐟🐟18,s >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>>> On Jul 15, 2015, at 2:47 PM, "[email protected]" >>>> <[email protected]> wrote: >>>> >>>> I would ask your Oncologist about alternative drugs to Gleevec. >>>> >>>>> On Wednesday, July 15, 2015 at 1:00:14 AM UTC-7, Choi wrote: >>>>> Hi, this is Choi. >>>>> >>>>> My friend's 12 years old son have CML. He got diagnosed when he was 7 >>>>> years old and on 200mg Gleevec for 5 years. >>>>> >>>>> Recently he has been suffering from severe nausea and stomach pain (sign >>>>> of gastritis) for 2 weeks. >>>>> >>>>> His Doctor gave treatment for gastritis; proton pump inhibitor, PPI. but >>>>> it doesn't work. >>>>> >>>>> Do you have any advice for relief from withdrawls symptoms? >>>>> >>>>> Choi. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
