Dear Jeannie and John. Good news from both of you over all...I am sl glad the meds are working for you...and Jeannie, I wish they could resolve the pain you have had for so long in your right side...maybe they can figure it out and do something to alleviate the pain.
I am doing O.K., Bcr results came in yesterday at none detected....so I am going on a holiday..trying to lower CPK with steroids, and try and cleanse my liver etc...have to go for a colonoscopy and endoscopy as I have had a lot of problems in recent months so they will go in and take a look and hopefully know what to do to help me as well.. I am trying to let fear be my companion, not my guide, breath in and out and count my blessings.. ..I have been stuck in the bathroom for over a month..missed seeing our dear friend with CML who was visiting her doctor at Northwesetern...next time!!! Hope to see Greenie and his wife and anyone else who lives near Fort Myers..going on vacation DEc. 12-19th....so let me know...must plan to meet....my tests will be all over by then and hopefully I will be feeling much much better!!! Love and 18's to all of you. Stay strong and stay positive! Even through the crappy parts. :) Beth -----Original Message----- From: John Barrons <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Nov 11, 2015 9:31 am Subject: Re: [CMLHope] Hi john 11th month on ponatinib Hi Jeanie and all: I had cbc done yesterday and the counts were all stable. I have been on ponatinib for about three years now. I have been taking only one pill every two weeks for about six weeks. My spleen is enlarged but the doctor said not to worry about. So I will just continue on and see if in two weeks things are still stable. Glad you are doing Ok. My brain is a little foggy also so hopefully it has something to do with getting old. It is cool and rainy here but at the beginning of November we had temperatures in the70 range. Unbelievable!! Regards John B Sent from my iPad > On Nov 11, 2015, at 9:22 AM, 'Icandoallttc' via CMLHope <[email protected]> wrote: > > Hi John and all. Just checking in to see how you are doing. > I am in my 11th month of ponatinib. > I seem to be doing good. WBC have been a little high but onc didn't seem to care. > Now he worries about some nodes on lungs. > Might do pet scan first of year. Have you had one? > Still have dry skin and bad pain under right ribs. Have brain fog also. > I hope everyone is good. > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
