Yes Judy, I was off gleevec for over seven years after having brain bleeds (small strokes because of the medicine.) i was tested every 3 mos. all that time. I stayed in cellular remission but not in molecular remission. Long story ....but I pray you get to stay off until they find a cure!!
We are all rooting for you!!! Blessings and 18's, Susan zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 On Thursday, February 4, 2016 'judy' via CMLHope <[email protected]> wrote: Hello I for got my pass work so couldn get on cml I was on gleevec for I don't rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY COUNTS HAD BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR NOW AND STILL NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF THIS IF O HOW ARE YOU DOING??????? judy On Thursday, February 4, 2016 4:26 PM, Marty Gartenberg <[email protected]> wrote: Hi Peg, I don't want you to ever forget something. TWO NUMBERS 18's I always put them at the end of any of my posts, and if you don't remember the their meaning it is life. I think that you must have remembered what I have gone through for this past year and also from 26 years ago. You know what I see more people posting 18's I wonder why but I already know why. 18's Marty On Tue, Feb 2, 2016 at 10:55 AM, peg <[email protected]> wrote: Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life. You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
